The recent Bronchiectasis Patient Education Event was a huge success, drawing a full house of attendees eager to learn and engage with experts in the field. Held at UCL, the event brought together a diverse group of individuals, including patients, caregivers, fundraisers and healthcare professionals, all united by a common goal: to enhance the understanding and management of bronchiectasis.
The expert panel from the UCLH Bronchiectasis team included Consultant Respiratory Specialists Professor Jeremy Brown and Dr Santino Capocci, Respiratory Physiotherapist Rebecca Livingston and Clinical Nurse Specialist Alison Webb. Their collective expertise provided attendees with a comprehensive overview of bronchiectasis, covering everything from medical management to lifestyle modifications.
Adding a personal touch to the proceedings, Jane Walker, a long-term bronchiectasis patient, shared her inspiring journey. Her story of resilience and determination highlighted the day-to-day challenges of living with bronchiectasis. Jane also recounted her impressive fundraising efforts for Breathing Matters, which has significantly contributed to bronchiectasis research and patient awareness.
The event also featured presentations on vaccines along with current and future research initiatives. The latest updates on vaccine developments were particularly well-received, offering hope and reassurance to those affected by bronchiectasis. These sessions underscored the ongoing efforts to improve patient outcomes through cutting-edge research and medical advancements.
One of the most well-received aspects of the event was the interactive Q&A session. Attendees were given the opportunity to pose their questions directly to the panel, resulting in a dynamic and informative discussion. The session addressed a wide range of topics, from symptom management and treatment options to practical advice for living with bronchiectasis.
Feedback collected from attendees painted a clear picture of the event’s success. Many participants expressed that they had learned a great deal, particularly valuing the expert insights and the practical advice shared during the Q&A session. Comments such as “extremely helpful” and “thoroughly informative” were common, reflecting the overall positive reception with many specifically appreciative of the research updates given showing what the future holds.
The event was sponsored by Breathing Matters, a UCLH Charity which supports research into lung infections, such as bronchiectasis, as well as interstitial lung diseases. The success of the event would not have been possible without the dedicated efforts of multiple volunteers from both the research and the clinical teams; many thanks to them all.
Special thanks are extended to Pascal Durrenberger [www.pfdphotographie.com] a professional photographer with a background in Respiratory research, who generously volunteered his time to capture the event. A gallery of the event photos are below.
By bringing together experts, patients, caregivers and fundraisers, this event not only provided crucial education, but also fostered a sense of support and hope. As we look to the future, the ongoing efforts to educate and empower those affected by bronchiectasis will undoubtedly continue to make a significant impact.
