Lung fibrosis researchers need you!

We need your help to help us focus on future research projects!

Over the last year, Imperial College London, the James Lind Alliance, Action for Pulmonary Fibrosis along with a Steering Committee including patients, carers and clinicians, have been asking the question about what future pulmonary fibrosis research should look like.

Over 1,600 questions were generated by people affected by progressive pulmonary fibrosis.  These questions have been shortlisted to 40 questions that reflect the most commonly unanswered concerns relating to PPF. 

To reach the top 10 important questions, we need you to get involved and have your say by completing this 15 minute survey:


Get your family and friends to complete the survey – the more voices we have, the louder we can hear you.

The survey is open until Monday, 9th May 2022 – please get involved and tell us what matters to you – HAVE YOUR SAY NOW!

Taking part in this survey is good for everyone; it’s good for UK researchers, great for patients and families to have their voice heard and for us as charities to know where to focus funds raised.  This feedback will directly set future priorities for generations of researchers in the UK and across the world, and ultimately one step closer to finding a cure.

Thank you for helping us.


Click here for more information on the shortlisting process and next steps.

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Where there's research there's hope

Research into respiratory conditions accounts for just 2% of all the medical research funding in the UK.

Will you support respiratory research?