Stark Facts about Pulmonary Fibrosis

  • Men are nearly twice as likely as women to suffer from IPF
  • There are 8000 new cases of IPF every year in the UK.
  • More than 30,000 people are living with IPF in the UK.
  • Without treatment, 50% of IPF sufferers will die within 3 years of diagnosis. Treatment extends life expectancy to 7-8 years.
  • More than 30,000 people will be diagnosed with IPF in the 27 EU countries each year.
  • IPF is more common than all leukaemias combined.
  • Most patients are diagnosed 1 to 12 years after their first symptoms.
  • 5 million people worldwide have IPF.


7 thoughts on "Stark Facts about Pulmonary Fibrosis"

  1. My father lived with Idiopathic Pulmonary Fibrosis for 15 years after being diagnosed. He was I’m a clinical trial most of that time until the pharma company shut it down in 2007. The doctors could not explain why he was the only person ever in history to live that long. They asked him to fly to Oxford Univ in England to speak to doctors but he was afraid to fly. He had the bottom of each lung removed. After the pharma company took him off the meds he died within 8 months. The pharma company said the drug was too expensive to manufacture for 1 person. My father was Samuel K. May, Sr. he passed March 18, 2008.

  2. My father was diagnosed in june 2015 he is already in late stages it is an awful disease watching someone you love dearly slowly suffocating to death is the worst pain ever! This awful disease needs more awareness not many people have heard of it and uts diagnosis is devestating

  3. My dad was diagnosed in 2009 he’s now been on o2 for 12 mths and seems to be doing well, he’s lost a lot of weight in the last 12 mth

  4. Research into Respiratory Disease apart from COPD and Asthma is very poor and is also very lazily connected with smoking.
    While it is definitely true that smoking is a prime cause of emphysema (part of COPD) and lung cancer.
    It probably has nothing whatsoever to do with IPF as very many people who get it have never smoked including my mother-in -law who died from it and more importantly emphysema is really the opposite of IPF with breakdown down of elastin and lung membrane to a degree depending on severity.
    However IPF is build of of elastin and thickening of lung membrane how can smoking cause or be linked to both?
    Very lazy research and labelling by NHS information as regards linking smoking to IPF.

  5. My Husband was diagnosed with IPF and mild diastolic heart dysfunction in March 2020  he has been put on Nintedanib and Beta Blockers . Not been able to see Consultant face to face because of COVID the disease seems to be progressing rapidly.  My Mum died Christmas Day last year with this dreadful disease in the end she was on oxygen day and night.  It is horrendous watching someone you love suffering with this disease and there is nothing you can do to help I so hope a cure is found soon

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