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Autumn 2018 Newsletter – Answers to Pollution Quiz

 

Q: What % of Londoners live in areas exceeding the World Health Organisation recommended pollution levels?

A: 95%

 

Q: What is PM2.5?

A: PM2.5 refers to atmospheric particulate matter (PM) that have a diameter of less than 2.5 micrometers, which is about 3% the diameter of a human hair. Commonly written as PM2.5, particles in this category are so small that they can only be detected with an electron microscope.  Since they are so small and light, fine particles tend to stay longer in the air than heavier particles. This increases the chances of humans and animals inhaling them into the bodies.

 

Q: Which of the following can you do to help decrease levels of pollution?

  • Reduce car journeys.
  • Keep house temperature down.
  • Walk more.
  • Campaign for change.
  • All of the above.

A: All of the above.  Please do your best not to add to the pollution.

 

Let Off Steam at our Silent Disco

If you haven’t been to a silent disco before, you don’t know what you’re missing.  This concept is straight out of the festivals and sweeping across the UK and is becoming more and more popular. This is your chance to experience a silent disco in an awesome setting. And for a fantastic cause too!

DJs do battle over separate wireless channels, playing the best in disco, 80’s and guilty pleasure classics. Don a headset and choose your favourite tune. No distraction – just dance!

The silent disco is on Friday, 9th November 2018 at 7.30pm till late at the London Museum of Water and Steam.

This museum, based right beside Kew Bridge, is an iconic and historic building, housing fabulous working engines from times gone by.

This is a unique opportunity to explore the museum after hours.

Why not make it extra special and be a VIP for the evening – VIP guests will enjoy:
– Complimentary prosecco [half bottle].
– Canapes.
– Exclusive raised gallery with a fantastic view of the steam hall.
– Private seating area.
– Unfortunately, no wheelchair access for VIP guests.

Need to know:
– Print out tickets or show on mobile. No ticket: no entry.
– Cash only bar.
– Bring change for the cloakroom (£2.50).
– Bring cash for a chance to win big money in our Money Share game.
– Nearest station: Kew Bridge (few mins’ walk), South Western Railway.
– Directions: www.waterandsteam.org.uk/plan-your-visit
– Free car parking for 20 cars; first come first served. There is one dedicated parking space for orange or blue badge holders.
– Wheelchair access for standard tickets only.
– Free WiFi

Don’t delay, buy your tickets here

[Donations gratefully received from Bates Group and Sainsbury’s Warren Street towards the cost of this event.]

 

 

Charity Christmas Concert

A Christmas Celebration with the Holst Singers

We are pleased to announce arrangements for our 2018 Christmas Concert with the Holst Singers in aid of bronchiectasis and lung infection research. The concert will be taking place at a NEW VENUE this year, ST PANCRAS CHURCH, Euston Road, NW1 2BA on Friday, 7th December at 7.30pm.

St Pancras Church is a beautiful historic building which is 200 years old and has a Grade I listing from English Heritage, as an important early example of the Greek Revival architecture.  It is located opposite Euston Station and is a short skip and a hop from UCL and UCLH, and we are really excited to secure this new venue.

The concert will feature well-known traditional carols as well as more contemporary Christmas music. The Holst Singers are one of Britain’s foremost choirs.  Our guest readers this year are well-known former BBC Radio 4 presenters, Charlotte Green and Brian Perkins.

The evening will comprise of a mixture of Christmas music performed by the choir, audience carols and seasonal readings.  There will be wine and mince pies available before and after the concert and during the interval.

For tickets (£25) and further information, please contact Jane Walker tel: 01732 366346 or email missjanewalker@hotmail.com

Tickets are also available online from: https://bmholstsingersconcert.bpt.me

We hope you are able to join us for a feast of seasonal music and a most wonderful start to the festive season!

Donation received from Profile Pharma, towards the costs of staging this concert

 

 

Challenge Yourself

Sometimes, a cycle at a national park, a coffee morning at your local cafe or a 10K run is just not enough of a challenge. Sometimes, you need to go further afield!

Breathing Matters has teamed up with Global Adventure Challenges who offer some amazing charity challenges. There are so many international challenges to choose from at www.globaladventurechallenges.com, but here’s just a few fabulous examples:

 

Nepal, Everest Base Camp Trek:  15.11-2.12.18, 7-24.3.19, 14.11-1.12.19

Minimum sponsorship:

£449 + £3,750 + airport TAX

Self-funding:

£449+ £1,875 + airport TAX

 

Tanzania, Kilimanjaro, Machame Trail Trek:  20-30.6.19

Minimum sponsorship:

£475 + £4,150 + airport TAX

Self-funding:

£475 + £2,075 + airport TAX

 

China, Great Wall Trek:  11-19.5.19

Minimum sponsorship:

£299 + £2,700 + airport TAX

Self-funding:

£299 + £1,350 + airport TAX

 

USA, Rock the Canyons: 11-18.5.19, 14-21.9.19

Minimum sponsorship:

£449 + £3,750 + airport TAX

Self-funding:

£449 + £1,875 + airport TAX

 

Morocco, Sahara Desert Trek: 14-19.3.19, 31.10-5.11.19

Minimum sponsorship:

£175 + £1,800 + airport TAX

Self-funding:

£175 + £900 + airport TAX

 

USA Yosemite to San Fran Cycle:  21-29.9.19

Minimum sponsorship:

£475 + £4,600 + airport TAX

Self-funding:

£475 + £2,300 + airport TAX

 

India Cycle: 15-24.11.19

Minimum sponsorship:

£349 + £3,000 + airport TAX

Self-funding:

£349 + £1,500 + airport TAX

 

Madagascar Cycle:  27.9-6.10.19

Minimum sponsorship:

£399 + £3,800 + airport TAX

Self-funding:

£399 + £1,900 + airport TAX

 

Lapland: Husky Trail Dog Sled:  30.3-6.4.19, 7-14.4.19

Minimum sponsorship:

£449 + £4,000 + airport TAX

Self-funding:

£449 + £2,000 + airport TAX

 

Payment Plan

There are two ways of funding your challenge; minimum sponsorship or self-funding.

For payment option A – minimum sponsorship – You pay the non-refundable deposit (the first sum above) to Global Adventure Challenges.  This is used to organise your trip including securing airline seats and relevant permits. You then commit to raising the minimum sponsorship (the second sum above) for Breathing Matters.  You can set up a Justgiving Page from our home page (https://www.justgiving.com/breathingmatters) and 80% of the minimum sponsorship MUST be raised no later than ELEVEN WEEKS BEFORE DEPARTURE as this is when Breathing Matters will pay your challenge costs direct to Global Adventure Challenges.  Failure to raise this money may mean non-participation and cancellation of your challenge so it is important to raise your funds early.  The remaining 20% should be received no more than two weeks after your challenge finishes (we may ask for proof of offline pledges). We would be grateful if you could try and raise as much as you can over the minimum sponsorship target as every penny of this is what Breathing Matters will receive.  The more you raise, the more research work we can do and the more your challenge will have been worthwhile.

For payment option B – self-funding – You pay the non-refundable deposit (the first sum above) to Global Adventure Challenges which is used to organise your trip including securing airline seats and relevant permits. Ten weeks before departure, Global Adventure Challenges will invoice you for the balance (the second sum above) and this should be paid within two weeks; eight weeks prior to your challenge.  Although there is no minimum sponsorship target for this option, we would encourage you to raise as much as possible for Breathing Matters (via https://www.justgiving.com/breathingmatters). The more you raise, the more research work we can do and the more your challenge will have been worthwhile.

If all the above fills you with dread, why don’t you check out many more challenges including those closer to home in the UK, including Hadrian’s Wall Trek, Ben Nevis Trek, Lakes 4 Peaks, Edinburgh Night Ride and Coast to Coast cycle on www.globaladventurechallenges.com

Always Remember: Breathing Matters!

 

 

Show and Tell Meetings

We have been busy this autumn meeting our fabulous supporters and patients and presenting our research work.

We had two separate patient/supporter meetings; one for bronchiectasis, and one for pulmonary fibrosis to celebrate #Breathtember (Pulmonary Fibrosis Awareness Month).

At the Pulmonary Fibrosis/Interstitial Lung Disease event, Dr Porter along with our fabulous clinical fellows and scientists presented their integral and very interesting research work into PF.

Presentations included:

  • Dr Akif Khawaja:  The role of neutrophils in Interstitial Lung Disease: a novel target for treatment.
  • Dr Deborah Chong: The role of platelets in Interstitial Lung Disease.
  • Dr Theresia Mikolasch: The first UK non-invasive lung biopsy service.
  • Dr Theresia Mikolasch: Using Cryobiopsy to assess Inhaled drug delivery to the distal lung.
  • Dr Manuela Plate:  Can we use circulating DNA to tell us about genetic changes in the lung?
  • Dr Wes Wellard:  Finding new genetic mutations in patients with IPF.
  • Dr Jagdeep Sahota:  The role of mucins in IPF.

After lunch, the focus group discussed future areas of research into interstitial lung disease.

The scientists loved meeting you and one scientist said that meeting you helped ‘motivate us to do more and do it better and quicker’.

 

At the Bronchiectasis Evening, Professor Brown explained what we know about bronchiectasis and what we still need to find out. And, importantly, how Breathing Matters can help. This was followed by a lively Q+A session when Professor Brown answered some in-depth questions on the treatment of the disease.

We were also treated to Jane Walker’s personal and touching account of coping with her condition. Jane organises our annual Christmas Concert and we were lucky to have one of the Holst Singers along with a representative from Pharma Profile who has given a donation towards the costs of staging this concert, with us that evening.

It was so lovely to meet so many of you in person and we look forward to seeing many of you at our Christmas Concert at St Paul’s Church in Covent Garden on Friday, 8th December 2017.

These meetings show how Breathing Matters have helped research into both lung diseases since our inception in 2011, and it is thanks to all our fundraisers and donors that this has been achieved.

We could not have done this without your support – thank you!

 

Christmas Concert Tickets Now Available

A CHRISTMAS CELEBRATION

WITH THE HOLST SINGERS

Friday 8th December 2017 – 7.30pm

St Paul’s Church, Covent Garden

Our annual Christmas Concert with the Holst Singers will take place on Friday 8th December at 7.30pm. The Holst Singers is one of Britain’s foremost choirs, described by the BBC as a “leading chorus on the international stage”.  The concert takes place in the lovely setting of the 17th century St Paul’s Church on the Covent Garden piazza that was designed by Inigo Jones, and will feature well-known traditional carols, as well as more contemporary Christmas music.

The concert will raise money for Breathing Matters, and in particular research into Bronchiectasis led by Professor Brown at University College London.  Our guest readers this year are well known BBC Radio Presenters Nigel Rees and Charlotte Green. Nigel Rees is a writer and broadcaster who has been presenting Radio 4’s “Quote….Unquote” for 40 years.  Charlotte Green has been a familiar voice on the radio for many years, having been the news reader for the Radio 4 “Today” programme and presented the comedy programme “The News Quiz”, and currently being the “reader” for “Quote….unquote”.  In 2013, she joined Classic FM as well as BBC Radio 5 Live, where she announces the football results.

Book your tickets now for what promises to be an evening of wonderful festive entertainment.

Tickets (£25) are now on sale here.  For further information and paper tickets, please contact Jane Walker either by email missjanewalker@hotmail.com or by phone 01732 366346.

 

”Donation received from Profile Pharma, towards the costs of staging this concert”

 

Save

Save

Christmas Concert – Get Your Tickets Here

Holly Please join us for:

an Evening of Carols

for Choir and Audience

with Seasonal Readings 

 

St Paul’s Church, Covent GardenSt Pauls logos

Friday 9th December 2016 at 7.30pm

The proceeds from the concert will go towards funding           Professor Jeremy Brown’s research at UCL into Bronchiectasis 

 

The Holst Singers is one of Britain’s foremost choirs

and has been described by the BBC

as a leading chorus on the international stage

Holst Singers Logo

Tickets are £25 and are now available from http://www.bmchristmas.bpt.me

For further details and paper tickets:

please contact Jane Walker

Tel: 01732 366346

Email: missjanewalker@hotmail.com

Gold Quiz: Autumn 2016 Newsletter

1964 James Bond movie – Goldfinger

Pyrite – Fools Gold

1849 California event – Gold Rush

What King Midas had – Golden Touch

Kanye West song – Gold Digger

Former name of Ghana – Gold Coast

Oil – Black Gold

Francis Drake’s ship – Golden Hind

San Fran bridge – Golden Gate

What our supporters have – a Heart of Gold!!!

 

Christmas is A-Coming

christmas-tree-blue-vector-illustrationFor those of you interested in supporting us by buying charity Christmas cards, you can order directly online with CharityChristmasCards.com

CharityChristmasCards.com sell both paper cards and, for those of you who are more green in nature, they also provide online cards to email to your friends and family. They also supply corporate cards so you can put your company name on the front cover.  Up to 50p per card is donated directly to Breathing Matters.

For those of you around the London area, why not come along to our Charity Christmas stall on Friday 25.11.16 11am-2pm at UCH Atrium where we will be selling stocking fillers, jewellery and designer handmade Christmas cards.

If you are interested in purchasing our handmade Christmas cards, which Jane Walker has designed, contact us directly on breathingmatters@ucl.ac.uk

Would you like to find out what type of Christmas charity supporter you are?  Read our article at http://bit.ly/19gNAoH

 

Don’t Let Flu Catch You This Year

bug-chasing-manThe ‘flu, or influenza virus can cause infections all year round, but in the UK, it is most common in the winter. There are many strains, some of which are worse than others, such as swine ‘flu (H1N1 strain) which tends to have a more rapid onset, high fevers and stomach upset and has caused fatalities, often in previously fit adults.  ‘Flu affects 10% of the population each year, but rises to 25-30% during an epidemic. In contrast, adults have approx 2 to 3 colds per year and children 5 to 6.

Do I Have ‘Flu or a Cold?

Features of ‘Flu Features of a Cold
  • Symptoms appear suddenly
  • Leaves you exhausted and unable to move, affecting the whole body
  • Can cause complications, including pneumonia, sometimes fatal
  • Lasts for one week, then you get better
  • Symptoms appear gradually
  • Affects only nose, throat, sinuses and upper chest
  • Still able to function
  • Recover fully in a week

Vaccination Against the ‘Flu

Anyone can get the ‘flu and, the more a person is in close contact with people who have the virus, the more likely they are to get it.  Certain at risk groups are advised to have a ‘flu vaccination. They include:

  • Everyone over the age of 65.
  • People of any age with lung diseases, heart disease, kidney disease, liver disease, diabetes or lowered immunity.
  • Anyone living in a residential or nursing home.
  • Carers of those at risk.

The UK is fortunate to have a safe and effective vaccination against the ‘flu, which is provided free of charge by the NHS. Those most at risk are advised to have a vaccination every year. This is because the ‘flu virus changes slightly every year.  Despite popular belief, the ‘flu vaccination can not give you ‘flu. It’s true that some people experience symptoms of a heavy cold at the same time or just after they’ve had the ‘flu jab – this is simply a coincidence and the symptoms are caused by one of the many common cold viruses in the autumn and winter.  It is still possible to suffer heavy colds after a vaccination, as the ‘flu jab only protects people from the ‘flu virus, not other viruses.

The ‘flu vaccination is available from October each year.  Anyone who thinks they need it should talk to their doctor or nurse.

How to Treat the ‘Flu

Antibiotics are of no use in treating ‘flu. Anti-viral medication is available from the GP for at risk groups, but it needs to be taken early on in the disease to stop the virus multiplying, and may only reduce the symptoms rather than treating the infection.

The best ways to treat the symptoms of flu are:

  • Get plenty of rest. The body uses a lot of energy fighting infections, so resting for the first couple of days gets it off to a good start.
  • Keep warm.
  • Make sure you drink plenty of water to avoid dehydration, and try hot water with lemon, ginger and honey to relieve symptoms such as sore throat.
  • Take paracetamol or anti-inflammatory medicines such as ibuprofen to lower a high temperature and relieve aches.

Always contact your doctor if you’re not getting better after a few days, if you’re unduly short of breath or if you’re coughing up blood or large amounts of yellow or green phlegm.

How to Keep Healthy and Avoid Getting the ‘Flu

  • Keep your immune system strong by eating a healthy diet.healthy-man
  • Take regular exercise.
  • Get enough rest and relaxation.
  • Do not smoke.
  • Take regular vitamins and bump up your vitamin C.
  • Wash your hands often and keep a bottle of antibacterial handclean around.
  • Avoid people who are coughing and sneezing, especially if they’re not covering their mouth and nose.
  • Use and bin your tissues.