This site uses cookies. You can read how we use them in our privacy policy.

fighting
pulmonary fibrosis

and infection

sign up to receive our news and updates

  • This form collects your name and email address so that we can keep you updated with news and information about Breathing Matters. Please check our Privacy Policy to see how we protect and manage your data.

General

articles

  • Related articles
  • Categories
  • Archives

Breathing Matters – Partner of the 2020 Respiratory Health Campaign

Breathing Matters is honoured to work with Health Awareness on the 2020 Respiratory Health campaign.

The campaign features exclusive content from key thought leaders and industry voices about respiratory conditions and external risk factors such as air pollution and COVID-19.

There are a wealth of great articles, including:

  • One person dies every hour of pulmonary fibrosis
  • Improve your quality of life with cleaner indoor air
  • Can your income make your asthma worse?
  • Breathlessness – when to seek help
  • Improving air quality around schools to protect children

A printed publication is enclosed within every copy of the Guardian newspaper and the content is available online at www.healthawareness.co.uk/respiratory.

Definitely worth a read!

 

 

 

 

New COVID-19 Clinical Trials Funded

Professor Joanna Porter was delighted to be awarded over £2M from LifeArc to run two clinical trials in COVID-19.

The first, ATTRACT, is in collaboration with Vicore Pharma, whom we have worked with for over 10 years on developing novel approaches for pulmonary fibrosis. The drug, VP01 (Compound 21; C21) is hoped to recalibrate the renin-angiotensin- system towards repair rather than inflammation.  This should indirectly help our research into pulmonary fibrosis too.

The second study, COVASE, is a collaboration with Veni Papayannopoulos and Veronique Brilaut at The Francis Crick Institute, to investigate an approved nebulised recombinant human deoxyribonuclease I (Dornase alfa) to reduce hyperinflammation from neutrophil extracellular traps in the lungs of hospitalised participants with COVID-19.

ATTRACT is open to recruitment and COVASE will open in the next two weeks.

Here’s the LifeArc press release with more info: https://www.lifearc.org/funding/covid-19-funding/

 

2021 Fundraising Challenges – Discounts for NHS Staff

This week, our partners Global Adventure Challenges launched their NHS Heroes campaign – to thank our incredible NHS staff.

They are offering a 15% discount on registration fees for all those working for the NHS for every challenge booked by 30th September 2020.  Great timing to book your 2021 challenge!

All you need to do is email events@globaladventurechallenges.com either from your NHS email address, or with a photo of your NHS ID card. Then you’ll get a personal discount code to register for your challenge.

There are some very special challenges both home and abroad to choose from, including:

There are many many more amazing challenges to choose from for 2021 here

 

New Law Around Organ Donation

Every day across the UK, someone dies waiting for a transplant.  On 20th May 2020, the law changed around organ donation.  This new act is called ‘Max and Keira’s Law’

This law sees organ donation change to an opt-out system. This means that all adults in England will be considered to have agreed to be an organ donor when they die unless they have recorded a decision not to donate or are in one of the excluded groups.

The excluded groups are:

  • Those under 18 years of age
  • Those who do not have the capacity to understand the change
  • People who have lived in England for less than 12 months or who are not living in England voluntarily

Families will still be consulted and people’s faith, beliefs and culture will continue to be respected.

It is important that you have a conversation with your loved ones about your personal decisions surrounding this so they know your wishes.

Get the facts about organ donation to help you decide here

After you have talked with family, register your decision here

 

 

 

Thank you all 2600 times

Due to the COVID-19 pandemic, many major fundraising events were cancelled this year, including the biggest fundraiser of all, the London Marathon.  Charities were reporting a projected loss of 48% to their voluntary income, and a third wiped off from their total income.

On Sunday, 26th April 2020 – one month ago today and the scheduled day of the London Marathon – the nation joined together to help UK charities.  The challenge was to dream up an activity based around the numbers ‘2’ and ‘6’ and donate (at least) £26 to their favourite charity.

Loads of our lovely supporters joined the 2.6 Challenge in droves to support Breathing Matters and we wanted to say thank you to you all.  You have helped us raise a very apt £2600!

Here are a few of our favourite challenges:

  • Thanks to Liz Wiazek and family for their 26 sun salutations.
  • Thanks to Jessica, Emily and Seb plus dog Megan for running 2.6 miles around Stokesley Beck, raising £373 in memory of their grandad Andy Herring.
  • Thanks to Pavan Kohli for walking 2.6 hours on a hot Sunday and raising £178.
  • Thanks to Karen, Mike, Jose and Oli Fox for running 2.6k en famille.
  • Thanks to Steph Fisher and her amazing family for raising an incredible £943 for their 2.6 challenges.
  • Thanks to Elizabeth Coe who walked her pony 26 times around the field.
  • Thank you to John McCready who wrote a lovely 26 line poem.
  • Big respect to Elisa and Andreas who did a 26 second handstand for their challenge!
  • Thanks to Val and Jack for walking up and down their corridor 26 times.
  • Thanks to Maisie McCready for walking around her garden 26 times every day for a week.
  • Thanks to Terri Russell for walk-jogging for 2.6K and ‘a little bit more’.
  • Thanks to Tom for doing 26 keepie-uppies … not easy!
  • Well done Jo Porter on giving 26 beloved books to charity.
  • Thanks to Mary Foley for walking 2.6k in 26 minutes – that’s speedy!
  • Well done Jerry Brown on completing a 2.6k bike ride.
  • Thanks to James and Emily for their 26.2 mile [marathon] bike ride.
  • Thanks to Greg and Colin who cycled 260K over the week – that’s as far as London to Sheffield! Thanks guys.
  • Thanks to Donna and Nick who did 26 Just Dance dances in 2.6 hours.
  • Thanks to the Smith family and the Howard family for doing a variety of 2.6 challenges … together – but not together.
  • Thanks to Rebecca and Ted who did 26 exercises 26 times.
  • Thanks to Sean for drinking a bottle of beer in 2.6 seconds!

Thank you to all the above plus everyone else who donated £26 and beyond to mark our 2.6 Challenge.

Carrying on with COVID-19

It is fair to say the world has changed in 2020 since the COVID-19 Coronavirus outbreak in December 2019.

Many of our research team have volunteered to work on the NHS frontline at this very busy time but, despite this, Breathing Matters is still continuing its important research work in interstitial lung diseases, pulmonary fibrosis, bronchiectasis and lung infections.

COVID-19 disease is caused by the SARS-Cov-2 virus. SARS means severe acute respiratory syndrome. So, Breathing Matters is joining the national effort in trying to find out as much as possible about this new virus; the more we know, the quicker we will have better treatments, less deaths, decreased shielding and ultimately a vaccine.

Our new studies will include researching new therapeutic agents and understanding the long-term damage to lungs in patients who have recovered from COVID-19, and perhaps give us more insights into the origins of IPF and other fibrotic lung diseases.

The funding we continue to receive from our supporters is vital to our community and to our future. Thank you so much for continuing to support our important work. Donations can be given in different ways: https://www.breathingmatters.co.uk/ways-to-donate

I am sure you would like to join us in saluting our extraordinary team who are working tirelessly in helping the nation, both on the frontline and in the labs.

Our very best wishes goes to every one of you. Please keep safe and stay alert.

 

COVID-19 and Impact on Charities

There have already been several surveys looking at the impact of coronavirus on charities. Help save the UK Charities!

The Institute of Fundraising in partnership with the Charity Finance Group and National Council for Voluntary Organisations have conducted research on the impact of the crisis on over 500 charities surveyed with the following findings:

  • Charities are reporting a projected loss of 48% to their voluntary income, and a third wiped off from their total income.
  • 52% of charities have reduced existing or previous levels of service, with a further 12% intending to in the future.
  • 83% say that the most important thing for their organisation’s sustainability over the coming 3 to 6 months is access to emergency grant funding.
  • 84% of charities think their organisation could play a role in responding to the coronavirus outbreak, with the majority saying that government funding was needed to help them to do so.
  • 91% of charities surveyed have already or expect to have their cash flow disrupted, with 62% indicating that these would result in reduced charitable activity.

Small Charities Coalition (SCC) findings:

  • Eight of ten small charities (80%) have had to alter or drop services.
  • Only one in five (20%) small charities are able to provide normal services because of the pandemic.
  • One in ten small charities expect to make redundancies.
  • Less than four in ten (37%) had set up remote working.

Looking specifically at London-based charities, London Plus released research which highlights (lowlights!):

  • Four in five charities are impacted by the coronavirus.
  • 43% said they have had staff absences due to coronavirus.
  • 59% of respondents agreed coronavirus has had a notable impact upon the sector.

[Article from Institute of Fundraising, 20.4.20]

Virtual Fundraising Challenges

For you lovely people out there who are itching to fundraise, but have not been able to during the COVID-19 pandemic – this is especially for you!

Our event partners, Run for Charity, have just launched a virtual challenge series for young and old, for the fit and not that fit.  It’s a great way of making the most of your time in isolation, having a purpose and keeping/getting fit.  It  is a unique chance for those non-marathon runners to get involved and run/walk a marathon or climb a mountain at your own pace.  And you can win a medal at the end (we all love a good medal!).

Here is a list of our current virtual challenges:

Climb Everest – A 12 week challenge perfect for isolation. Challengers will have to complete a climb equivalent to Mount Everest (8,848m) either out and about on your daily exercise, climbing the stairs indoors, or a combination of the two!

Inca Trail – A virtual challenge to tick off the bucket list. A 25 mile run, walk or jog to be completed in as many efforts as you can manage.

Team Gotham – Not all Superheros wear capes….some have to fight crime in isolation too! This is a 5K challenge, so perfect for families who want to complete it together, or anyone looking to stay fit during lockdown.

The Big Charity Run – The ultimate challenge; you can choose your own.  Pick a 30, 60, 90 or 120 mile distance to complete over a single month. You can run, walk or cycle, so perfect for setting an ambitious target and staying motivated!

Plus there are lots of location specific races that you could join, including:

  • Richmond Park – Half Marathon
  • Tatton Park – 10K
  • Victoria Park – 5K, 10K & Half Marathon
  • Brixton – 5K & 10K
  • Wimbledon Common – Half Marathon

All you need to do is choose your challenge, register and start.

  1. Choose and register here. Receive confirmation email to log in to our Secure Charity Portal.  Payment covers the cost of the place and medal only.
  2. Breathing Matters will get notification that you have signed up for your challenge and will contact you  Or you can contact us directly at breathingmatters@ucl.ac.uk
  3. Set up a Breathing Matters personal fundraising page.  It is up to you how much you want to raise for Breathing Matters; there is no minimum sponsorship limit.
  4. All you need to do is gather evidence along the way of your challenge (eg. photo of your fitness tracker, Strava) and, once completed, simply email it to virtual@runforcharity.com

Your medal will be sent out by our partner in the post.

Run for Charity have partnered with one of the top virtual events companies in the UK, ‘My Race’, who have been producing and fulfilling Virtual Events for many years, so you are in safe hands.

All funds raised will go towards much needed research into pulmonary fibrosis,  COVID-19, bronchiectasis and lung infection.

So you can keep safe, stay alert, social distance, and do something worthwhile at the same time!

What are you waiting for? …

 

In Memory Page

Thank you for visiting the Breathing Matters website to find out how to set up an ‘In Memory’ page.

You can set up an ‘In Memory’ page from our donation home page.  You can then share your personal donation page with friends and family. On this page, you can share memories, stories and photographs. You could also include details of a thanksgiving service. Your friends and family can add their sentiments too along with their donations and you can easily see what they have written and how much you have raised.

An ‘In Memory’ page is a way to let the memory of your loved one live on and is a wonderful way of celebrating their life. As well as being an online memorial in which you can share memories, stories and photographs, the funds raised through your page go directly to Breathing Matters and will help others affected by pulmonary fibrosis and other interstitial lung diseases plus COVID-19, bronchiectasis and other lung infections, and will help our work to continue in their memory.

You can keep your page open for as long as you wish too by adjusting the settings, so you can keep adding to your donations in the future or help promote fundraising if you are doing an event to commemorate your loved one. Your donation page is easy to share online so can be a good way to publicise and gather support for an event.

Your ‘In Memory’ page is created and maintained by you as a space to remember your friend or relative in your own way.

Thank you – giving a gift in memory is a very special way to remember your loved one.

 

Funeral Donations

If you are organising a collection in memory of a loved one and would like to donate to Breathing Matters to help us continue our important research work, we humbly thank you for thinking of us.

Organising a Collection

Many prefer to donate money in lieu of funeral flowers.

You can organise an online collection by setting up a personal donation page from our donation home page and then sharing your personal donation page with friends and family. On this page, you can share memories, stories and photographs with family and friends. You could also include details of a funeral or thanksgiving service. Your friends and family can add their sentiments too along with their donations.

The money raised will go directly to Breathing Matters and your donors will be given the option of giving Gift Aid which will increase their donations by 25%. You can also easily see how much has been raised in memory of your loved one.

Sending in Donations

Some family and friends may make donations by cheque or cash and your Funeral Director may collect these at the service.  When paying in donations, we would like to make sure that we process and acknowledge the donation correctly and it would be very helpful if you or the Funeral Director let us know:
• The name of the person the donation is being made in memory of.
• Your name, address and relationship to your loved one.

Please send all cheques to:
Breathing Matters
Rayne Institute, UCL
5 University Street
London WC1E 6JF

Feel free to print out our Gift Aid Certificate, which increases donations by 25%.

If you need any more information or if you need our bank details to directly transfer donations, please contact us on breathingmatters@ucl.ac.uk

Thank you – your donations will make a huge impact to our research work!