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Charity Christmas Concert

We are pleased to announce arrangements for our 2018 Christmas Concert with the Holst Singers in aid of bronchiectasis and lung infection research. The concert will be taking place at a NEW VENUE this year, ST PANCRAS CHURCH, Euston Road, NW1 2BA on Friday, 7th December at 7.30pm.

St Pancras Church is a beautiful historic building which is 200 years old and has a Grade I listing from English Heritage, as an important early example of the Greek Revival architecture.  It is located opposite Euston Station and is a short skip and a hop from UCL and UCLH, and we are really excited to secure this new venue.

The concert will feature well-known traditional carols as well as more contemporary Christmas music. The Holst Singers are one of Britain’s foremost choirs.  Our guest readers this year are well-known former BBC Radio 4 presenters, Charlotte Green and Brian Perkins.

The evening will comprise of a mixture of Christmas music performed by the choir, audience carols and seasonal readings.  There will be wine and mince pies available before and after the concert and during the interval.

For tickets (£25) and further information, please contact Jane Walker tel: 01732 366346 or email missjanewaalker@hotmail.com

Tickets are also available online from brown paper tickets: https://bmholstsingersconcert.bpt.me

We hope you are able to join us for a feast of seasonal music and a most wonderful start to the festive season!

ADD IMAGES – Profile – Holst – St Pancras

Donation received from Profile Pharma, towards the costs of staging this concert

 

 

Inspiring Students to become Scientists of the Future

The William Perkin story started with a child being fascinated by science – and setting out to ask ‘Why?’ and ‘What for?’  What a perfect school for a visit to inspire students to go into research.

Breathing Matters and Dr Pascal Durrenberger, a STEM ambassador and UCL Respiratory scientist, took part in the William Perkins CofE High School Founders’ Day celebrations on Friday 11th May 2018 as part of the Big Bang London Programme @ Schools Events.  The Big Bang programme actively helps promote STEM subjects throughout the UK (Science, Technology, Engineering, Maths).

Our workshop was called “The Lung Project”. Dr Durrenberger gave an inspirational talk to the students explaining how and why he got into science research.

We then had three main activities for the children:

  1. X-man Pneumatico (a ping-pong breathing game)
  2. Play Histologist (identifying lung diseases on microscope slides)
  3. Help the Lung Scientist (medical quiz).

There were points to win on all sessions and we gave out prizes to the students with the most points.

The Founders Day included many eminent scientists, including Lord Professor Robert Winston (of a ‘Child of our Time’ fame) and Professor Sara Rankin from Imperial College.

Feedback from the day was very positive with numerous students specifically mentioning our workshop: ‘The best thing I did today was… “Breathing session”. “Lung Workshop”.

A special thank you goes to Michelle Drew from Waterstones Piccadilly for donating books as prizes. Funding was also provided by Breathing Matters.

Cycling Matters at Cyclotopia

The sun shone over the Velodrome as over 100 riders enjoyed the bikefest of activities which can only mean one thing – Cyclotopia was back again!

Cyclists of all ages and abilities pedalled over the smooth traffic-free road circuit, challenged themselves on the bumpy mountain trail and sped around the Olympic Velodrome track, the fastest in the world.

The event brought in almost £6000 for Breathing Matters and Haematology Cancer Care, both UCLH Charities.

Thank you to our amazing volunteers, without whose help this event could not have taken place.  We are indebted to you all.

Thank you also to Jules Mountain who donated his book as prizes to our fastest cyclists, and to the amazingly professional staff at the Lee Valley VeloPark.

Finally, we thank our photographers Mark Mbm and Gerwyn Jones for the lovely photos:

 

Jewellery Stalls

Our Breathing Matters’ stall this Friday 4th May 2018 is going to be our first Jewellery stall. The handmade bead jewellery has been very kindly donated to us by the family of one of Professor Brown’s patients. The lady had bronchiectasis and very sadly she has recently passed away. During her illness, she took up bead making as a hobby and the family thought the most fitting tribute would be donate her jewellery in the hope it could be sold to raise funds for Professor Brown’s research into bronchiectasis and lung infection. There will be a selection of necklaces, earrings and bracelets for the first stall…..there are over 150 items in total. 

The stall will be in the UCH atrium from 11.00 until 1pm this Friday 4th May 2018. 

Do come along to support this stall if you are in the London area.  We are hoping that Friday will be the first of many jewellery stalls.

 

 

 

Ride London 100 Places Now Available

Are you a keen cyclist and want a serious challenge?  How about doing the Prudential Ride London 100 on Sunday, 29th July 2018.

Ride London really is a true gem of an event starting at the iconic Olympic VeloPark in Lee Valley, cycling 100 miles of closed roads past London landmarks and through the stunning Surrey countryside (and hills!) and finishing in champion-style at the Mall outside Buckingham Palace!  It’s the UK’s largest world-class festival of cycling.

You don’t have to be an elite cyclist, however, and can choose a start time based at your level – you just need to be able to finish the course in under 9 hours and be over 18.  More info for riders can be found here.

Breathing Matters has a limited number of guaranteed places for this year’s event.  Registration is £50 and we ask that you raise £450 for Breathing Matters.  To sign up, email us at breathingmatters@ucl.ac.uk

The deadline for sign ups is Tuesday, 22nd May 2018, so don’t delay.

 

 

 

 

 

 

Challenge Yourself

Sometimes, a cycle at a national park, a coffee morning at your local cafe or a 10K run is just not enough of a challenge. Sometimes, you need to go further afield!

Breathing Matters has teamed up with Global Adventure Challenges who offer some amazing charity challenges. There are so many international challenges to choose from at www.globaladventurechallenges.com, but here’s just a few fabulous examples:

 

Nepal, Everest Base Camp Trek:  15.11-2.12.18, 7-24.3.19, 14.11-1.12.19

Minimum sponsorship:

£399 + £3,750 + airport TAX (2018)

£449 + £3,750 + airport TAX (2019)

Self-funding:

£399 + £1,875 + airport TAX (2018)

£449+ £1,875 + airport TAX (2019)

 

Tanzania, Kilimanjaro, Machame Trail Trek: 11-12.10.18, 20-30.6.19, 19-29.9.19

Minimum sponsorship:

£449 + £4,100 + airport TAX (2018)

£475 + £4,150 + airport TAX (2019)

Self-funding:

£449 + £2,050 + airport TAX (2018)

£475 + £2,075 + airport TAX (2019)

 

China, Great Wall Trek:  8-16.9.18, 19-27.10.18, many more in 2019

Minimum sponsorship:

£299 + £2,700 + airport TAX (2018)

£299 + £2,700 + airport TAX (2019)

Self-funding:

£299 + £1,350 + airport TAX (2018)

£299 + £1,350 + airport TAX (2019)

 

USA, Rock the Canyons: 15-22.9.18, 11-18.5.19, 14-21.9.19

Minimum sponsorship:

£449 + £3,650 + airport TAX (2018)

£449 + £3,750 + airport TAX (2019)

Self-funding:

£449 + £1,825 + airport TAX (2018)

£449 + £1,875 + airport TAX (2019)

 

Morocco, Sahara Desert Trek: 14-19.3.19, 31.10-5.11.19

Minimum sponsorship:

£175 + £1,820 + airport TAX (2018)

£175 + £1,800 + airport TAX (2019)

Self-funding:

£175 + £910 + airport TAX (2018)

£175 + £900 + airport TAX (2019)

 

USA Yosemite to San Fran Cycle:  22-30.9.18, 21-29.9.19

Minimum sponsorship:

£449 + £4,550 + airport TAX (2018)

£475 + £4,600 + airport TAX (2019)

Self-funding:

£449 + £2,275 + airport TAX (2018)

£475 + £2,300 + airport TAX (2019)

 

India Cycle: 16-25.11.18, 15-24.11.19

Minimum sponsorship:

£299 + £3,000 + airport TAX (2018)

£349 + £3,000 + airport TAX (2019)

Self-funding:

£299 + £1,500 + airport TAX (2018)

£349 + £1,500 + airport TAX (2019)

 

Madagascar Cycle: 28.9-7.10.18, 27.9-6.10.19

Minimum sponsorship:

£399 + £3,600 + airport TAX (2018)

£399 + £3,800 + airport TAX (2019)

Self-funding:

£399 + £1,800 + airport TAX (2018)

£399 + £1,900 + airport TAX (2019)

 

London to Paris Bike Ride:  15-19.8.18, 12-16.9.18

Minimum sponsorship:          £125 + £1,600 + airport TAX (2018)

Self-funding:                           £125 + £800 + airport TAX (2018)

 

Tour de France London to Paris Bike Ride: 25-29.7.18

Minimum sponsorship:          £149 + £1,630 + airport TAX (2018)

Self-funding:                           £149 + £815 + airport TAX (2018)

 

 

Lapland: Husky Trail Dog Sled:  22-29.3.19, 30.3-6.4.19, 7-14.4.19

Minimum sponsorship: £449 + £4,000 + airport TAX

Self-funding:                  £449 + £2,000 + airport TAX

 

Payment Plan

There are two ways of funding your challenge; minimum sponsorship or self-funding.

For payment option A – minimum sponsorship – You pay the non-refundable deposit (the first sum above) to Global Adventure Challenges.  This is used to organise your trip including securing airline seats and relevant permits. You then commit to raising the minimum sponsorship (the second sum above) for Breathing Matters.  You can set up a Justgiving Page from our home page (https://www.justgiving.com/breathingmatters) and 80% of the minimum sponsorship MUST be raised no later than ELEVEN WEEKS BEFORE DEPARTURE as this is when Breathing Matters will pay your challenge costs direct to Global Adventure Challenges.  Failure to raise this money may mean non-participation and cancellation of your challenge so it is important to raise your funds early.  The remaining 20% should be received no more than two weeks after your challenge finishes (we may ask for proof of offline pledges). We would be grateful if you could try and raise as much as you can over the minimum sponsorship target as every penny of this is what Breathing Matters will receive.  The more you raise, the more research work we can do and the more your challenge will have been worthwhile.

For payment option B – self-funding – You pay the non-refundable deposit (the first sum above) to Global Adventure Challenges which is used to organise your trip including securing airline seats and relevant permits. Ten weeks before departure, Global Adventure Challenges will invoice you for the balance (the second sum above) and this should be paid within two weeks; eight weeks prior to your challenge.  Although there is no minimum sponsorship target for this option, we would encourage you to raise as much as possible for Breathing Matters (via https://www.justgiving.com/breathingmatters). The more you raise, the more research work we can do and the more your challenge will have been worthwhile.

If all the above fills you with dread, why don’t you check out many more challenges including those closer to home in the UK, including Hadrian’s Wall Trek, Ben Nevis Trek, Lakes 4 Peaks, Edinburgh Night Ride and Coast to Coast cycle on www.globaladventurechallenges.com

Always Remember: Breathing Matters!

 

 

A Festive Feast of Singing

We had a fabulous evening last night at St Paul’s Actor’s Church, Covent Garden, for our annual Christmas Concert. We were entertained once again by the magical Holst Singers. The concert was sold out and the audience interaction almost brought the house down with popular renditions of ‘Hark! the Herald Angels Sing’ and ‘Once in Royal David’s City’.

Thank you to BBC Radio presenters, Nigel Rees and Charlotte Green who amused us with hilarious Christmas readings.

Thanks also to the fabulous volunteers who worked tirelessly to make the event go smoothly and to Pharma Profile who sponsored the concert.

But a very special thank you goes to Jane Walker who organised the concert and, if you look closely, you can see her singing along with the choir on one of the photos below!

What a wonderful evening to start off the Festive Season.

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Will you be a doer, a goer or a giver at Christmas?

 

If you are a doer – why not organise your own Christmas event … a cheese and mulled wine evening, a harvest festival, a Christmas swish party (exchanging glittery outfits for a donation) or join a Santa Run.  Have a look at our events page for inspiration: http://bit.ly/2zFd6fM

 

If you are a goer – why not attend our Christmas Concert on Friday 8th December 2017 at 7.30pm in the beautiful St Pauls Actors’ Church in Covent Garden.  There will be traditional carols along with interactive Christmas tunes. Tickets are £25. This really is not to be missed and starts off the festive season so nicely! For more information, visit: bit.ly/2tIYbO9   

 

If you are a giver – why not support us by buying charity Christmas Cards, you can order directly online with CharityChristmasCards.com  They sell paper cards, online cards and corporate cards.  Up to 50p per card is donated directly to Breathing Matters.

For those of you around the London area, why not come along to our Charity Christmas Stalls on Friday 17th November 2017 or Friday 1st December 2017, 11am-1pm, at UCH Atrium for stocking fillers, jewellery and designer Christmas cards. If you are interested in purchasing our handmade Christmas cards which Jane Walker has designed, contact us directly on breathingmatters@ucl.ac.uk

 

A lot of you simply donate to charity instead of spending too much money on obligatory Christmas pressies.  If you do this, you are also considered ‘a giver’ and are much loved by all.

https://www.justgiving.com/breathingmatters

 

Would you like to find out what type of Christmas charity supporter you are?  Read our article: http://bit.ly/19gNAoH

A very merry Christmas to all our fantastic supporters.  A healthy and happy Christmas to all doers, goers and givers!

 

Show and Tell Meetings

We have been busy this autumn meeting our fabulous supporters and patients and presenting our research work.

We had two separate patient/supporter meetings; one for bronchiectasis, and one for pulmonary fibrosis to celebrate #Breathtember (Pulmonary Fibrosis Awareness Month).

At the Pulmonary Fibrosis/Interstitial Lung Disease event, Dr Porter along with our fabulous clinical fellows and scientists presented their integral and very interesting research work into PF.

Presentations included:

  • Dr Akif Khawaja:  The role of neutrophils in Interstitial Lung Disease: a novel target for treatment.
  • Dr Deborah Chong: The role of platelets in Interstitial Lung Disease.
  • Dr Theresia Mikolasch: The first UK non-invasive lung biopsy service.
  • Dr Theresia Mikolasch: Using Cryobiopsy to assess Inhaled drug delivery to the distal lung.
  • Dr Manuela Plate:  Can we use circulating DNA to tell us about genetic changes in the lung?
  • Dr Wes Wellard:  Finding new genetic mutations in patients with IPF.
  • Dr Jagdeep Sahota:  The role of mucins in IPF.

After lunch, the focus group discussed future areas of research into interstitial lung disease.

The scientists loved meeting you and one scientist said that meeting you helped ‘motivate us to do more and do it better and quicker’.

 

At the Bronchiectasis Evening, Professor Brown explained what we know about bronchiectasis and what we still need to find out. And, importantly, how Breathing Matters can help. This was followed by a lively Q+A session when Professor Brown answered some in-depth questions on the treatment of the disease.

We were also treated to Jane Walker’s personal and touching account of coping with her condition. Jane organises our annual Christmas Concert and we were lucky to have one of the Holst Singers along with a representative from Pharma Profile who has given a donation towards the costs of staging this concert, with us that evening.

It was so lovely to meet so many of you in person and we look forward to seeing many of you at our Christmas Concert at St Paul’s Church in Covent Garden on Friday, 8th December 2017.

These meetings show how Breathing Matters have helped research into both lung diseases since our inception in 2011, and it is thanks to all our fundraisers and donors that this has been achieved.

We could not have done this without your support – thank you!

 

Christmas Concert Tickets Now Available

A CHRISTMAS CELEBRATION

WITH THE HOLST SINGERS

Friday 8th December 2017 – 7.30pm

St Paul’s Church, Covent Garden

Our annual Christmas Concert with the Holst Singers will take place on Friday 8th December at 7.30pm. The Holst Singers is one of Britain’s foremost choirs, described by the BBC as a “leading chorus on the international stage”.  The concert takes place in the lovely setting of the 17th century St Paul’s Church on the Covent Garden piazza that was designed by Inigo Jones, and will feature well-known traditional carols, as well as more contemporary Christmas music.

The concert will raise money for Breathing Matters, and in particular research into Bronchiectasis led by Professor Brown at University College London.  Our guest readers this year are well known BBC Radio Presenters Nigel Rees and Charlotte Green. Nigel Rees is a writer and broadcaster who has been presenting Radio 4’s “Quote….Unquote” for 40 years.  Charlotte Green has been a familiar voice on the radio for many years, having been the news reader for the Radio 4 “Today” programme and presented the comedy programme “The News Quiz”, and currently being the “reader” for “Quote….unquote”.  In 2013, she joined Classic FM as well as BBC Radio 5 Live, where she announces the football results.

Book your tickets now for what promises to be an evening of wonderful festive entertainment.

Tickets (£25) are now on sale here.  For further information and paper tickets, please contact Jane Walker either by email missjanewalker@hotmail.com or by phone 01732 366346.

 

”Donation received from Profile Pharma, towards the costs of staging this concert”

 

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