This site uses cookies. You can read how we use them in our privacy policy.

fighting
pulmonary fibrosis

and infection

sign up to receive our news and updates

  • This form collects your name and email address so that we can keep you updated with news and information about Breathing Matters. Please check our Privacy Policy to see how we protect and manage your data.

Bronchiectasis

articles

  • Related articles
  • Categories
  • Archives

Breathing Matters – Partner of the 2020 Respiratory Health Campaign

Breathing Matters is honoured to work with Health Awareness on the 2020 Respiratory Health campaign.

The campaign features exclusive content from key thought leaders and industry voices about respiratory conditions and external risk factors such as air pollution and COVID-19.

There are a wealth of great articles, including:

  • One person dies every hour of pulmonary fibrosis
  • Improve your quality of life with cleaner indoor air
  • Can your income make your asthma worse?
  • Breathlessness – when to seek help
  • Improving air quality around schools to protect children

A printed publication is enclosed within every copy of the Guardian newspaper and the content is available online at www.healthawareness.co.uk/respiratory.

Definitely worth a read!

 

 

 

 

Thank you all 2600 times

Due to the COVID-19 pandemic, many major fundraising events were cancelled this year, including the biggest fundraiser of all, the London Marathon.  Charities were reporting a projected loss of 48% to their voluntary income, and a third wiped off from their total income.

On Sunday, 26th April 2020 – one month ago today and the scheduled day of the London Marathon – the nation joined together to help UK charities.  The challenge was to dream up an activity based around the numbers ‘2’ and ‘6’ and donate (at least) £26 to their favourite charity.

Loads of our lovely supporters joined the 2.6 Challenge in droves to support Breathing Matters and we wanted to say thank you to you all.  You have helped us raise a very apt £2600!

Here are a few of our favourite challenges:

  • Thanks to Liz Wiazek and family for their 26 sun salutations.
  • Thanks to Jessica, Emily and Seb plus dog Megan for running 2.6 miles around Stokesley Beck, raising £373 in memory of their grandad Andy Herring.
  • Thanks to Pavan Kohli for walking 2.6 hours on a hot Sunday and raising £178.
  • Thanks to Karen, Mike, Jose and Oli Fox for running 2.6k en famille.
  • Thanks to Steph Fisher and her amazing family for raising an incredible £943 for their 2.6 challenges.
  • Thanks to Elizabeth Coe who walked her pony 26 times around the field.
  • Thank you to John McCready who wrote a lovely 26 line poem.
  • Big respect to Elisa and Andreas who did a 26 second handstand for their challenge!
  • Thanks to Val and Jack for walking up and down their corridor 26 times.
  • Thanks to Maisie McCready for walking around her garden 26 times every day for a week.
  • Thanks to Terri Russell for walk-jogging for 2.6K and ‘a little bit more’.
  • Thanks to Tom for doing 26 keepie-uppies … not easy!
  • Well done Jo Porter on giving 26 beloved books to charity.
  • Thanks to Mary Foley for walking 2.6k in 26 minutes – that’s speedy!
  • Well done Jerry Brown on completing a 2.6k bike ride.
  • Thanks to James and Emily for their 26.2 mile [marathon] bike ride.
  • Thanks to Greg and Colin who cycled 260K over the week – that’s as far as London to Sheffield! Thanks guys.
  • Thanks to Donna and Nick who did 26 Just Dance dances in 2.6 hours.
  • Thanks to the Smith family and the Howard family for doing a variety of 2.6 challenges … together – but not together.
  • Thanks to Rebecca and Ted who did 26 exercises 26 times.
  • Thanks to Sean for drinking a bottle of beer in 2.6 seconds!

Thank you to all the above plus everyone else who donated £26 and beyond to mark our 2.6 Challenge.

Carrying on with COVID-19

It is fair to say the world has changed in 2020 since the COVID-19 Coronavirus outbreak in December 2019.

Many of our research team have volunteered to work on the NHS frontline at this very busy time but, despite this, Breathing Matters is still continuing its important research work in interstitial lung diseases, pulmonary fibrosis, bronchiectasis and lung infections.

COVID-19 disease is caused by the SARS-Cov-2 virus. SARS means severe acute respiratory syndrome. So, Breathing Matters is joining the national effort in trying to find out as much as possible about this new virus; the more we know, the quicker we will have better treatments, less deaths, decreased shielding and ultimately a vaccine.

Our new studies will include researching new therapeutic agents and understanding the long-term damage to lungs in patients who have recovered from COVID-19, and perhaps give us more insights into the origins of IPF and other fibrotic lung diseases.

The funding we continue to receive from our supporters is vital to our community and to our future. Thank you so much for continuing to support our important work. Donations can be given in different ways: https://www.breathingmatters.co.uk/ways-to-donate

I am sure you would like to join us in saluting our extraordinary team who are working tirelessly in helping the nation, both on the frontline and in the labs.

Our very best wishes goes to every one of you. Please keep safe and stay alert.

 

Breathing Matters Joins the 2.6 Challenge to Save UK Charities

Breathing Matters calls on supporters to join The 2.6 Challenge on Sunday 26 April 2020

Breathing Matters, like so many charities across the UK, has been hugely impacted by the cancellation of thousands of fundraising events due to COVID-19.

In response, the organisers of the biggest mass participation sports events across the country have come together to create a new campaign to raise vital funds to help our fundraising and save the UK’s charities.

The campaign, The 2.6 Challenge, will launch on Sunday 26 April 2020 – what should have been the date of the 40th London Marathon, the world’s biggest one day annual fundraising event, which raised £66.4 million for charities in 2019.  The challenge will last for a week. The 2.6 Challenge is open to anyone of any age – the only requirement is that the activity must follow the Government guidelines on exercise and social distancing and remember to stay local.

From Sunday 26 April 2020, we are asking you to dream up an activity based around the numbers 2.6 or 26 and fundraise by donating on the Breathing Matters’ 2.6 Challenge donation page or by creating your own 2.6 Challenge fundraising page from the Breathing Matters Justgiving home page.

The 2.6 Challenge can be anything that works for you,” says Nick Rusling, Co-Chair of the Mass Participation Sports Organisers group (MSO) and CEO of Human Race. “You can run or walk 2.6 miles, 2.6km or for 26 minutes. You could do the same in your home or garden, go up and down the stairs 26 times, juggle for 2.6 minutes, do a 26 minute exercise class or get 26 people on a video call and do a 26 minute workout – anything you like. We want people to get active, have fun and raise money to help Save the UK’s Charities by giving money or raising funds for the charity close to your heart.”

“For many of the UK’s charities, the day of the London Marathon is the biggest fundraising day of the year,” said Hugh Brasher, Co-Chair of MSO and Event Director of London Marathon Events. “One of the founding pillars of the London Marathon was ‘to show how the family of mankind can be united’. We hope that The 2.6 Challenge, which starts on the day our 40th Race should have taken place, will embody that spirit and inspire people, families and communities to fundraise for their chosen charity to help Save the UK’s Charities. Right now, our vulnerable members of society need the help of charities more than ever before..”

Donna Basire, Fundraising Manager from Breathing Matters said “This event could really be a lifesaver to so many as money raised for Breathing Matters funds research into respiratory conditions such as pulmonary fibrosis, COVID-19, bronchiectasis and pneumonia.  You can do this at your own pace and in your own house or garden – so the challenge is open to everyone. All we ask is that you donate £26 to the Breathing Matters 2.6 Challenge page, or set up your own page and have your own target to raise – could you raise £260?”.

The mass-participation events organisers behind The 2.6 Challenge are: Human Race, parkrun, The Great Run Company, Run 4 Wales, Grounded Events, London Landmarks, Virgin Sport, Limelight Sports, Threshold Sports, Running High and London Marathon Events. The design and website has been created by Studio Republic and the social media campaign by LiveWire Sport. Both agencies are working pro bono.  The campaign is supported by the Charities Aid Foundation, the Institute of Fundraising, the Small Charities Coalition, the Office for Civil Society, Sport England, Let’s Do This, Virgin Money Giving and JustGiving.

For more information on The 2.6 Challenge, visit twopointsixchallenge.co.uk

Virtual Fundraising Challenges

For you lovely people out there who are itching to fundraise, but have not been able to during the COVID-19 pandemic – this is especially for you!

Our event partners, Run for Charity, have just launched a virtual challenge series for young and old, for the fit and not that fit.  It’s a great way of making the most of your time in isolation, having a purpose and keeping/getting fit.  It  is a unique chance for those non-marathon runners to get involved and run/walk a marathon or climb a mountain at your own pace.  And you can win a medal at the end (we all love a good medal!).

Here is a list of our current virtual challenges:

Climb Everest – A 12 week challenge perfect for isolation. Challengers will have to complete a climb equivalent to Mount Everest (8,848m) either out and about on your daily exercise, climbing the stairs indoors, or a combination of the two!

Inca Trail – A virtual challenge to tick off the bucket list. A 25 mile run, walk or jog to be completed in as many efforts as you can manage.

Team Gotham – Not all Superheros wear capes….some have to fight crime in isolation too! This is a 5K challenge, so perfect for families who want to complete it together, or anyone looking to stay fit during lockdown.

The Big Charity Run – The ultimate challenge; you can choose your own.  Pick a 30, 60, 90 or 120 mile distance to complete over a single month. You can run, walk or cycle, so perfect for setting an ambitious target and staying motivated!

Plus there are lots of location specific races that you could join, including:

  • Richmond Park – Half Marathon
  • Tatton Park – 10K
  • Victoria Park – 5K, 10K & Half Marathon
  • Brixton – 5K & 10K
  • Wimbledon Common – Half Marathon

All you need to do is choose your challenge, register and start.

  1. Choose and register here. Receive confirmation email to log in to our Secure Charity Portal.  Payment covers the cost of the place and medal only.
  2. Breathing Matters will get notification that you have signed up for your challenge and will contact you  Or you can contact us directly at breathingmatters@ucl.ac.uk
  3. Set up a Breathing Matters personal fundraising page.  It is up to you how much you want to raise for Breathing Matters; there is no minimum sponsorship limit.
  4. All you need to do is gather evidence along the way of your challenge (eg. photo of your fitness tracker, Strava) and, once completed, simply email it to virtual@runforcharity.com

Your medal will be sent out by our partner in the post.

Run for Charity have partnered with one of the top virtual events companies in the UK, ‘My Race’, who have been producing and fulfilling Virtual Events for many years, so you are in safe hands.

All funds raised will go towards much needed research into pulmonary fibrosis,  COVID-19, bronchiectasis and lung infection.

So you can keep safe, stay alert, social distance, and do something worthwhile at the same time!

What are you waiting for? …

 

Newsletter – Autumn 2019

Lung Infection Research Update

Prof Brown’s team has had two papers on bronchiectasis published recently.

The first describes the rapid development of bronchiectasis in patients who have weakened immune systems due to haematological disease.  This includes information for around 80 patients about bronchiectasis caused by haematological disorders such as lymphoma, myeloma  or leukaemia. This is the largest number of these patients described in the medical literature, and is important as it makes other doctors aware that bronchiectasis develops very quickly in these patients and causes a lot of ill health; better awareness of the problem will make doctors much better at recognising these patients and referring them to specialist centres, such as UCLH.

The other paper on bronchiectasis uses computers and CT scans to measure the exact degree of the dilatation of the bronchi in patients with bronchiectasis.  The more dilated the bronchi the worse the bronchiectasis, but at present we can only really measure this by eye just looking at the CT scans, which is not very accurate. Using computer software to give an actual measurement for the severity of bronchial dilatation would be a significant breakthrough as it would allow us to follow what happens to a particular patient over time, and rapidly identify if things are getting worse.

Three research papers have also been published which describe new findings about how the commonest cause of pneumonia.

Streptococcus pneumoniae interacts with humans to cause infection.   They describe the mechanisms by which the human immune system recognises the presence of S. pneumoniae and then responds to cause inflammation that is necessary for controlling infection. They are basic science research which do not directly feed into clinical care, but help us better understand how diseases like pneumonia develop and could therefore be prevented.

  1. Jose R et al. De novo bronchiectasis in haematological malignancies. ERJ Open, in press 2019.
  2. Kin et al.  Reproducibility of an airway tapering measurement in computed tomography with application to bronchiectasis.’  J Medical Imaging, in press 2019.
  3. Weight CM, et al. Epithelial control of colonisation by Streptococcus pneumoniae at the human mucosal surface Nat Comms 2019 10(1):3060.
  4. Javan RR et al. Prophages and satellite prophages are widespread among Streptococcus species and may play a role in pneumococcal pathogenesis Nat Communications, in press 2019.
  5. Periselneris J et al. Relative contribution of extracellular and internalised bacteria to early macrophage pro-inflammatory responses to Streptococcus pneumoniae. mBio, in press 2019.

 

Holst Singers’ Charity Christmas Concert

Holst Singers Christmas Concert in aid of Bronchiectasis research at UCL

Friday 13th December 2019,  7.30pm, St Pancras Church

Tickets now on sale (£25 each) for a festive treat of traditional and contemporary seasonal music and readings.

The Holst Singers annual Christmas Concert to raise funds for bronchiectasis research at UCL will once again take place in the neo-classical setting of St Pancras Church (Euston Road NW1 2BA) on the edge of Bloomsbury, just a short distance from UCLH. As in previous years, Charlotte Green of BBC Radio 4 will delight us with readings and there will be audience carols as well as a feast of seasonal music performed by the Holst Singers.  Tickets will be available on the door, but to be sure of a place at what will be one of the most wonderful evenings of the year, booking tickets early is advisable.

For further information and tickets, please contact Jane Walker either by telephone 01732 366346 or by email missjanewalker@hotmail.com

Tickets are also available online by clicking this link https://bmchristmasconcert.bpt.me

Donation received from Profile Pharma, towards the costs of staging this concert

Visit our new Justgiving page

Breathing Matters has a brand new Justgiving page.  We have transferring to a campaign page under the UCLH Charity Justgiving Page.  The new link is: https://www.justgiving.com/campaign/breathingmatters  This will save us on Justgiving fees for Breathing Matters, so more of your money goes directly to where it’s needed!

Please visit our new online donation page to donate, or to just have a look-see 🙂

Current open Justgiving pages on our old Justgiving Page will remain active, so you don’t need to do anything.

Together we can do more!

 

Autumn 2018 Newsletter – Answers to Pollution Quiz

 

Q: What % of Londoners live in areas exceeding the World Health Organisation recommended pollution levels?

A: 95%

 

Q: What is PM2.5?

A: PM2.5 refers to atmospheric particulate matter (PM) that have a diameter of less than 2.5 micrometers, which is about 3% the diameter of a human hair. Commonly written as PM2.5, particles in this category are so small that they can only be detected with an electron microscope.  Since they are so small and light, fine particles tend to stay longer in the air than heavier particles. This increases the chances of humans and animals inhaling them into the bodies.

 

Q: Which of the following can you do to help decrease levels of pollution?

  • Reduce car journeys.
  • Keep house temperature down.
  • Walk more.
  • Campaign for change.
  • All of the above.

A: All of the above.  Please do your best not to add to the pollution.