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New Law Around Organ Donation

Every day across the UK, someone dies waiting for a transplant.  On 20th May 2020, the law changed around organ donation.  This new act is called ‘Max and Keira’s Law’

This law sees organ donation change to an opt-out system. This means that all adults in England will be considered to have agreed to be an organ donor when they die unless they have recorded a decision not to donate or are in one of the excluded groups.

The excluded groups are:

  • Those under 18 years of age
  • Those who do not have the capacity to understand the change
  • People who have lived in England for less than 12 months or who are not living in England voluntarily

Families will still be consulted and people’s faith, beliefs and culture will continue to be respected.

It is important that you have a conversation with your loved ones about your personal decisions surrounding this so they know your wishes.

Get the facts about organ donation to help you decide here

After you have talked with family, register your decision here

 

 

 

Thank you all 2600 times

Due to the COVID-19 pandemic, many major fundraising events were cancelled this year, including the biggest fundraiser of all, the London Marathon.  Charities were reporting a projected loss of 48% to their voluntary income, and a third wiped off from their total income.

On Sunday, 26th April 2020 – one month ago today and the scheduled day of the London Marathon – the nation joined together to help UK charities.  The challenge was to dream up an activity based around the numbers ‘2’ and ‘6’ and donate (at least) £26 to their favourite charity.

Loads of our lovely supporters joined the 2.6 Challenge in droves to support Breathing Matters and we wanted to say thank you to you all.  You have helped us raise a very apt £2600!

Here are a few of our favourite challenges:

  • Thanks to Liz Wiazek and family for their 26 sun salutations.
  • Thanks to Jessica, Emily and Seb plus dog Megan for running 2.6 miles around Stokesley Beck, raising £373 in memory of their grandad Andy Herring.
  • Thanks to Pavan Kohli for walking 2.6 hours on a hot Sunday and raising £178.
  • Thanks to Karen, Mike, Jose and Oli Fox for running 2.6k en famille.
  • Thanks to Steph Fisher and her amazing family for raising an incredible £943 for their 2.6 challenges.
  • Thanks to Elizabeth Coe who walked her pony 26 times around the field.
  • Thank you to John McCready who wrote a lovely 26 line poem.
  • Big respect to Elisa and Andreas who did a 26 second handstand for their challenge!
  • Thanks to Val and Jack for walking up and down their corridor 26 times.
  • Thanks to Maisie McCready for walking around her garden 26 times every day for a week.
  • Thanks to Terri Russell for walk-jogging for 2.6K and ‘a little bit more’.
  • Thanks to Tom for doing 26 keepie-uppies … not easy!
  • Well done Jo Porter on giving 26 beloved books to charity.
  • Thanks to Mary Foley for walking 2.6k in 26 minutes – that’s speedy!
  • Well done Jerry Brown on completing a 2.6k bike ride.
  • Thanks to James and Emily for their 26.2 mile [marathon] bike ride.
  • Thanks to Greg and Colin who cycled 260K over the week – that’s as far as London to Sheffield! Thanks guys.
  • Thanks to Donna and Nick who did 26 Just Dance dances in 2.6 hours.
  • Thanks to the Smith family and the Howard family for doing a variety of 2.6 challenges … together – but not together.
  • Thanks to Rebecca and Ted who did 26 exercises 26 times.
  • Thanks to Sean for drinking a bottle of beer in 2.6 seconds!

Thank you to all the above plus everyone else who donated £26 and beyond to mark our 2.6 Challenge.

Carrying on with COVID-19

It is fair to say the world has changed in 2020 since the COVID-19 Coronavirus outbreak in December 2019.

Many of our research team have volunteered to work on the NHS frontline at this very busy time but, despite this, Breathing Matters is still continuing its important research work in interstitial lung diseases, pulmonary fibrosis, bronchiectasis and lung infections.

COVID-19 disease is caused by the SARS-Cov-2 virus. SARS means severe acute respiratory syndrome. So, Breathing Matters is joining the national effort in trying to find out as much as possible about this new virus; the more we know, the quicker we will have better treatments, less deaths, decreased shielding and ultimately a vaccine.

Our new studies will include researching new therapeutic agents and understanding the long-term damage to lungs in patients who have recovered from COVID-19, and perhaps give us more insights into the origins of IPF and other fibrotic lung diseases.

The funding we continue to receive from our supporters is vital to our community and to our future. Thank you so much for continuing to support our important work. Donations can be given in different ways: https://www.breathingmatters.co.uk/ways-to-donate

I am sure you would like to join us in saluting our extraordinary team who are working tirelessly in helping the nation, both on the frontline and in the labs.

Our very best wishes goes to every one of you. Please keep safe and stay alert.

 

COVID-19 and Impact on Charities

There have already been several surveys looking at the impact of coronavirus on charities. Help save the UK Charities!

The Institute of Fundraising in partnership with the Charity Finance Group and National Council for Voluntary Organisations have conducted research on the impact of the crisis on over 500 charities surveyed with the following findings:

  • Charities are reporting a projected loss of 48% to their voluntary income, and a third wiped off from their total income.
  • 52% of charities have reduced existing or previous levels of service, with a further 12% intending to in the future.
  • 83% say that the most important thing for their organisation’s sustainability over the coming 3 to 6 months is access to emergency grant funding.
  • 84% of charities think their organisation could play a role in responding to the coronavirus outbreak, with the majority saying that government funding was needed to help them to do so.
  • 91% of charities surveyed have already or expect to have their cash flow disrupted, with 62% indicating that these would result in reduced charitable activity.

Small Charities Coalition (SCC) findings:

  • Eight of ten small charities (80%) have had to alter or drop services.
  • Only one in five (20%) small charities are able to provide normal services because of the pandemic.
  • One in ten small charities expect to make redundancies.
  • Less than four in ten (37%) had set up remote working.

Looking specifically at London-based charities, London Plus released research which highlights (lowlights!):

  • Four in five charities are impacted by the coronavirus.
  • 43% said they have had staff absences due to coronavirus.
  • 59% of respondents agreed coronavirus has had a notable impact upon the sector.

[Article from Institute of Fundraising, 20.4.20]

Breathing Matters Joins the 2.6 Challenge to Save UK Charities

Breathing Matters calls on supporters to join The 2.6 Challenge on Sunday 26 April 2020

Breathing Matters, like so many charities across the UK, has been hugely impacted by the cancellation of thousands of fundraising events due to COVID-19.

In response, the organisers of the biggest mass participation sports events across the country have come together to create a new campaign to raise vital funds to help our fundraising and save the UK’s charities.

The campaign, The 2.6 Challenge, will launch on Sunday 26 April 2020 – what should have been the date of the 40th London Marathon, the world’s biggest one day annual fundraising event, which raised £66.4 million for charities in 2019.  The challenge will last for a week. The 2.6 Challenge is open to anyone of any age – the only requirement is that the activity must follow the Government guidelines on exercise and social distancing and remember to stay local.

From Sunday 26 April 2020, we are asking you to dream up an activity based around the numbers 2.6 or 26 and fundraise by donating on the Breathing Matters’ 2.6 Challenge donation page or by creating your own 2.6 Challenge fundraising page from the Breathing Matters Justgiving home page.

The 2.6 Challenge can be anything that works for you,” says Nick Rusling, Co-Chair of the Mass Participation Sports Organisers group (MSO) and CEO of Human Race. “You can run or walk 2.6 miles, 2.6km or for 26 minutes. You could do the same in your home or garden, go up and down the stairs 26 times, juggle for 2.6 minutes, do a 26 minute exercise class or get 26 people on a video call and do a 26 minute workout – anything you like. We want people to get active, have fun and raise money to help Save the UK’s Charities by giving money or raising funds for the charity close to your heart.”

“For many of the UK’s charities, the day of the London Marathon is the biggest fundraising day of the year,” said Hugh Brasher, Co-Chair of MSO and Event Director of London Marathon Events. “One of the founding pillars of the London Marathon was ‘to show how the family of mankind can be united’. We hope that The 2.6 Challenge, which starts on the day our 40th Race should have taken place, will embody that spirit and inspire people, families and communities to fundraise for their chosen charity to help Save the UK’s Charities. Right now, our vulnerable members of society need the help of charities more than ever before..”

Donna Basire, Fundraising Manager from Breathing Matters said “This event could really be a lifesaver to so many as money raised for Breathing Matters funds research into respiratory conditions such as pulmonary fibrosis, COVID-19, bronchiectasis and pneumonia.  You can do this at your own pace and in your own house or garden – so the challenge is open to everyone. All we ask is that you donate £26 to the Breathing Matters 2.6 Challenge page, or set up your own page and have your own target to raise – could you raise £260?”.

The mass-participation events organisers behind The 2.6 Challenge are: Human Race, parkrun, The Great Run Company, Run 4 Wales, Grounded Events, London Landmarks, Virgin Sport, Limelight Sports, Threshold Sports, Running High and London Marathon Events. The design and website has been created by Studio Republic and the social media campaign by LiveWire Sport. Both agencies are working pro bono.  The campaign is supported by the Charities Aid Foundation, the Institute of Fundraising, the Small Charities Coalition, the Office for Civil Society, Sport England, Let’s Do This, Virgin Money Giving and JustGiving.

For more information on The 2.6 Challenge, visit twopointsixchallenge.co.uk

Virtual Fundraising Challenges

For you lovely people out there who are itching to fundraise, but have not been able to during the COVID-19 pandemic – this is especially for you!

Our event partners, Run for Charity, have just launched a virtual challenge series for young and old, for the fit and not that fit.  It’s a great way of making the most of your time in isolation, having a purpose and keeping/getting fit.  It  is a unique chance for those non-marathon runners to get involved and run/walk a marathon or climb a mountain at your own pace.  And you can win a medal at the end (we all love a good medal!).

Here is a list of our current virtual challenges:

Climb Everest – A 12 week challenge perfect for isolation. Challengers will have to complete a climb equivalent to Mount Everest (8,848m) either out and about on your daily exercise, climbing the stairs indoors, or a combination of the two!

Inca Trail – A virtual challenge to tick off the bucket list. A 25 mile run, walk or jog to be completed in as many efforts as you can manage.

Team Gotham – Not all Superheros wear capes….some have to fight crime in isolation too! This is a 5K challenge, so perfect for families who want to complete it together, or anyone looking to stay fit during lockdown.

The Big Charity Run – The ultimate challenge; you can choose your own.  Pick a 30, 60, 90 or 120 mile distance to complete over a single month. You can run, walk or cycle, so perfect for setting an ambitious target and staying motivated!

Plus there are lots of location specific races that you could join, including:

  • Richmond Park – Half Marathon
  • Tatton Park – 10K
  • Victoria Park – 5K, 10K & Half Marathon
  • Brixton – 5K & 10K
  • Wimbledon Common – Half Marathon

All you need to do is choose your challenge, register and start.

  1. Choose and register here. Receive confirmation email to log in to our Secure Charity Portal.  Payment covers the cost of the place and medal only.
  2. Breathing Matters will get notification that you have signed up for your challenge and will contact you  Or you can contact us directly at breathingmatters@ucl.ac.uk
  3. Set up a Breathing Matters personal fundraising page.  It is up to you how much you want to raise for Breathing Matters; there is no minimum sponsorship limit.
  4. All you need to do is gather evidence along the way of your challenge (eg. photo of your fitness tracker, Strava) and, once completed, simply email it to virtual@runforcharity.com

Your medal will be sent out by our partner in the post.

Run for Charity have partnered with one of the top virtual events companies in the UK, ‘My Race’, who have been producing and fulfilling Virtual Events for many years, so you are in safe hands.

All funds raised will go towards much needed research into pulmonary fibrosis,  COVID-19, bronchiectasis and lung infection.

So you can keep safe, stay alert, social distance, and do something worthwhile at the same time!

What are you waiting for? …

 

Call for Help from Ex-Inpatients with COVID-19

URGENT call to patients that have been admitted to hospital with diagnosed COVID-19.
We need your immediate help in writing a protocol for a COVID-19 clinical trial.
Please email us on breathingmatters@ucl.ac.uk and we will email you back with questions.
Thank you in advance.

 

 

 

In Memory Page

Thank you for visiting the Breathing Matters website to find out how to set up an ‘In Memory’ page.

You can set up an ‘In Memory’ page from our donation home page.  You can then share your personal donation page with friends and family. On this page, you can share memories, stories and photographs. You could also include details of a thanksgiving service. Your friends and family can add their sentiments too along with their donations and you can easily see what they have written and how much you have raised.

An ‘In Memory’ page is a way to let the memory of your loved one live on and is a wonderful way of celebrating their life. As well as being an online memorial in which you can share memories, stories and photographs, the funds raised through your page go directly to Breathing Matters and will help others affected by pulmonary fibrosis and other interstitial lung diseases plus COVID-19, bronchiectasis and other lung infections, and will help our work to continue in their memory.

You can keep your page open for as long as you wish too by adjusting the settings, so you can keep adding to your donations in the future or help promote fundraising if you are doing an event to commemorate your loved one. Your donation page is easy to share online so can be a good way to publicise and gather support for an event.

Your ‘In Memory’ page is created and maintained by you as a space to remember your friend or relative in your own way.

Thank you – giving a gift in memory is a very special way to remember your loved one.

 

Funeral Donations

If you are organising a collection in memory of a loved one and would like to donate to Breathing Matters to help us continue our important research work, we humbly thank you for thinking of us.

Organising a Collection

Many prefer to donate money in lieu of funeral flowers.

You can organise an online collection by setting up a personal donation page from our donation home page and then sharing your personal donation page with friends and family. On this page, you can share memories, stories and photographs with family and friends. You could also include details of a funeral or thanksgiving service. Your friends and family can add their sentiments too along with their donations.

The money raised will go directly to Breathing Matters and your donors will be given the option of giving Gift Aid which will increase their donations by 25%. You can also easily see how much has been raised in memory of your loved one.

Sending in Donations

Some family and friends may make donations by cheque or cash and your Funeral Director may collect these at the service.  When paying in donations, we would like to make sure that we process and acknowledge the donation correctly and it would be very helpful if you or the Funeral Director let us know:
• The name of the person the donation is being made in memory of.
• Your name, address and relationship to your loved one.

Please send all cheques to:
Breathing Matters
Rayne Institute, UCL
5 University Street
London WC1E 6JF

Feel free to print out our Gift Aid Certificate, which increases donations by 25%.

If you need any more information or if you need our bank details to directly transfer donations, please contact us on breathingmatters@ucl.ac.uk

Thank you – your donations will make a huge impact to our research work!

 

Spring 2020 Newsletter – Coronavirus Quiz Answers

Can a face mask protect you from the virus?

Currently, there is not enough evidence for or against the use of masks (medical or other) in healthy individuals in the wider community. However, WHO is actively studying the rapidly evolving science on masks and continuously updates its guidance.  Medical masks are recommended primarily in health care settings, but can be considered in other circumstances (see WHO guidelines). Medical masks should be combined with other key infection prevention and control measures such as hand hygiene and physical distancing.

What is the official name of this coronavirus?

SARS-Cov-2.  This virus causes the disease called COVID-19.  ‘COVID’ = COronaVIrusDisease. 19 from the year it was identified.

How long should you wash your hands for?

You should wash your hands for 20 seconds – two verses of ‘Happy Birthday To You’.

What is the NHS Helpline number?

111. 

To get help from NHS 111, you can:

  • Go to 111.nhs.uk (for people aged 5 and over only)
  • Call 111

NHS 111 is available 24 hours a day, 7 days a week.

If you have difficulties communicating or hearing, you can:

 

How do you protect yourself from the coronavirus?

  • Regularly and thoroughly clean your hands with an alcohol-based hand rub or wash them with soap and water.
    Why? Washing your hands with soap and water or using alcohol-based hand rub kills viruses that may be on your hands.
  • Maintain at least 2 metre (6 feet) distance between yourself and anyone who is coughing or sneezing.
    Why? When someone coughs or sneezes they spray small liquid droplets from their nose or mouth which may contain virus. If you are too close, you can breathe in the droplets, including the coronavirus if the person coughing has the disease.
  • Avoid touching eyes, nose and mouth.
    Why? Hands touch many surfaces and can pick up viruses. Once contaminated, hands can transfer the virus to your eyes, nose or mouth. From there, the virus can enter your body and can make you sick.
  • Make sure you, and the people around you, follow good respiratory hygiene. This means covering your mouth and nose with your bent elbow or tissue when you cough or sneeze. Then dispose of the used tissue immediately.
    Why? Droplets spread virus. By following good respiratory hygiene you protect the people around you from the virus.
  • Self-isolate by staying at home if you begin to feel unwell, even with mild symptoms such as headache, low grade fever (37.3 C or above) and slight runny nose, until you recover. If it is essential for you to have someone bring you supplies or to go out, e.g. to buy food, then wear a mask to avoid infecting other people.
    Why? Avoiding contact with others and visits to medical facilities will allow these facilities to operate more effectively and help protect you and others from possible COVID-19 and other viruses.
  • If you develop fever, cough and difficulty breathing, seek medical advice promptly as this may be due to a respiratory infection or other serious condition. Call in advance and tell your provider of any recent travel or contact with travellers.
    Why? Calling in advance will allow your health care provider to quickly direct you to the right health facility. This will also help to prevent possible spread of COVID-19 and other viruses.

Information taken from

Updated advice from 26.5.20: 

Stay alert.

We can all help control the virus if we all stay alert. This means you must:

  • stay at home as much as possible
  • work from home if you can
  • limit contact with other people
  • keep your distance if you go out (2 metres apart where possible)
  • wash your hands regularly

Do not leave home if you or anyone in your household has symptoms.

Information taken from: https://www.gov.uk/coronavirus