This site uses cookies. You can read how we use them in our privacy policy.

fighting
pulmonary fibrosis

and infection

sign up to receive our news and updates

  • This form collects your name and email address so that we can keep you updated with news and information about Breathing Matters. Please check our Privacy Policy to see how we protect and manage your data.

articles

  • Related articles
  • Categories
  • Archives

Organ Donation – Talk About It

Organ Donation Week is 3-9 September 2018.

Three people die around the UK each day while waiting for an organ and 1,255 people are on the waiting list in London alone.  Sadly, many donation opportunities are lost every year because families don’t know if their loved one wanted to be a donor or not. Family support is crucial to enable donations to take place.

Anthony Clarkson, interim director of organ donation and transplantation for NHS Blood and Transplant said: “Words save lives. Please, tell your family you want to save lives through organ donation because it could be the difference between life and death for someone else.”

Please find time to have this life-saving discussion with your family.

For more information and to join the NHS Organ Donor Register, click here

 

Charity Christmas Concert

We are pleased to announce arrangements for our 2018 Christmas Concert with the Holst Singers in aid of bronchiectasis and lung infection research. The concert will be taking place at a NEW VENUE this year, ST PANCRAS CHURCH, Euston Road, NW1 2BA on Friday, 7th December at 7.30pm.

St Pancras Church is a beautiful historic building which is 200 years old and has a Grade I listing from English Heritage, as an important early example of the Greek Revival architecture.  It is located opposite Euston Station and is a short skip and a hop from UCL and UCLH, and we are really excited to secure this new venue.

The concert will feature well-known traditional carols as well as more contemporary Christmas music. The Holst Singers are one of Britain’s foremost choirs.  Our guest readers this year are well-known former BBC Radio 4 presenters, Charlotte Green and Brian Perkins.

The evening will comprise of a mixture of Christmas music performed by the choir, audience carols and seasonal readings.  There will be wine and mince pies available before and after the concert and during the interval.

For tickets (£25) and further information, please contact Jane Walker tel: 01732 366346 or email missjanewaalker@hotmail.com

Tickets are also available online from brown paper tickets: https://bmholstsingersconcert.bpt.me

We hope you are able to join us for a feast of seasonal music and a most wonderful start to the festive season!

ADD IMAGES – Profile – Holst – St Pancras

Donation received from Profile Pharma, towards the costs of staging this concert

 

 

Summer Newsletter 2018 – Answers to Youngest Ever Football Quiz

At the age of 17, who became the youngest footballer to play at a World Cup?

  • Pele

Who is England’s youngest ever goalkeeper?

  • Jack Butland: Butland made his debut in 2012, breaking a record that had stood since Billy Moon first played for England in 1888.

Whose goal against Macedonia made him the youngest player to score for England?

  • Wayne Rooney: Rooney, who was still playing for Everton, was 17 years old at the time. Two months later, in April 2003, he became the youngest player to start a match for England.

Who holds the record for being the youngest manager to win a major European trophy?

  • André Villas-Boas: Villas-Boas was only 33 when he won the Europa League with Porto

Summer 2018 Newsletter

 

For our Summer 2018 Newsletter, please click here

 

 

Get out of Breath for #Breathtember

September is #Breathtember – Global Pulmonary Fibrosis Awareness Month

 Get out of Breath for #Breathtember

Tweet Tweet!

https://www.breathingmatters.co.uk/wp-content/uploads/2013/06/twitter.png

To help raise awareness, we would ask that supporters tweet different challenges each day in September including the term ‘#Breathtember and to ask their followers to retweet and share this information as widely as possible.

Think outside the box for your challenges – getting out of breath for you could mean:

  • Cycling around your local park
  • Doing a colourful or musical 5K/10K run or walk
  • Singing until you are out of breath
  • Walking over the wonderous London bridges
  • Blow bubbles!
  • Skydiving
  • Or just simply walking up the stairs!

The important thing is that you tweet your challenge every day including the term ‘#Breathtember’ to raise awareness of pulmonary fibrosis.  Add a photo if you like.  This September, we want as many people as possible to see the term ‘#Breathtember’.  To make the biggest impact, the aim is to get the term ‘#Breathtember’ to trend.

Follow us on Twitter for further details: @Breathingmatter 

twitter

 

 

Inspiring Students to become Scientists of the Future

The William Perkin story started with a child being fascinated by science – and setting out to ask ‘Why?’ and ‘What for?’  What a perfect school for a visit to inspire students to go into research.

Breathing Matters and Dr Pascal Durrenberger, a STEM ambassador and UCL Respiratory scientist, took part in the William Perkins CofE High School Founders’ Day celebrations on Friday 11th May 2018 as part of the Big Bang London Programme @ Schools Events.  The Big Bang programme actively helps promote STEM subjects throughout the UK (Science, Technology, Engineering, Maths).

Our workshop was called “The Lung Project”. Dr Durrenberger gave an inspirational talk to the students explaining how and why he got into science research.

We then had three main activities for the children:

  1. X-man Pneumatico (a ping-pong breathing game)
  2. Play Histologist (identifying lung diseases on microscope slides)
  3. Help the Lung Scientist (medical quiz).

There were points to win on all sessions and we gave out prizes to the students with the most points.

The Founders Day included many eminent scientists, including Lord Professor Robert Winston (of a ‘Child of our Time’ fame) and Professor Sara Rankin from Imperial College.

Feedback from the day was very positive with numerous students specifically mentioning our workshop: ‘The best thing I did today was… “Breathing session”. “Lung Workshop”.

A special thank you goes to Michelle Drew from Waterstones Piccadilly for donating books as prizes. Funding was also provided by Breathing Matters.

Cycling Matters at Cyclotopia

The sun shone over the Velodrome as over 100 riders enjoyed the bikefest of activities which can only mean one thing – Cyclotopia was back again!

Cyclists of all ages and abilities pedalled over the smooth traffic-free road circuit, challenged themselves on the bumpy mountain trail and sped around the Olympic Velodrome track, the fastest in the world.

The event brought in almost £6000 for Breathing Matters and Haematology Cancer Care, both UCLH Charities.

Thank you to our amazing volunteers, without whose help this event could not have taken place.  We are indebted to you all.

Thank you also to Jules Mountain who donated his book as prizes to our fastest cyclists, and to the amazingly professional staff at the Lee Valley VeloPark.

Finally, we thank our photographers Mark Mbm and Gerwyn Jones for the lovely photos:

 

Jewellery Stalls

Our Breathing Matters’ stall this Friday 4th May 2018 is going to be our first Jewellery stall. The handmade bead jewellery has been very kindly donated to us by the family of one of Professor Brown’s patients. The lady had bronchiectasis and very sadly she has recently passed away. During her illness, she took up bead making as a hobby and the family thought the most fitting tribute would be donate her jewellery in the hope it could be sold to raise funds for Professor Brown’s research into bronchiectasis and lung infection. There will be a selection of necklaces, earrings and bracelets for the first stall…..there are over 150 items in total. 

The stall will be in the UCH atrium from 11.00 until 1pm this Friday 4th May 2018. 

Do come along to support this stall if you are in the London area.  We are hoping that Friday will be the first of many jewellery stalls.

 

 

 

Spring 2018 Newsletter – Answers to the 2017 UK Firsts Quiz

 

Q: Who was announced as the 13th Doctor Who?

A: Jodie Whittaker

 

Q: What is the biggest selling single of 2017?

A: ‘Shape of You’, By Ed Sheeran

 

Q: Who won the BAFTA for Best Film in 2017?

A: La La Land

 

Q: What was the best selling book of 2017? [Data from the Guardian]

A: Non-fiction = ‘5 Ingredients, Quick and Easy Food’, by Jamie Oliver ‘- sold 716K

A: Fiction = ‘Bad Dad’, by David Walliams – sold 568K

 

Q: Who won Strictly Come Dancing?

A: Joe McFadden

 

Q: What were the top 3 boys and girls names of 2017? [Data from the Office of National Statistics]

Boys                            Girls

Noah                           Olivia

Harry                          Amelia

Oliver                          Emily

Spring 2018 Newsletter is Here

For the Spring 2018 Newsletter, please click here