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Call for Help from Ex-Inpatients with COVID-19

URGENT call to patients that have been admitted to hospital with diagnosed COVID-19.
We need your immediate help in writing a protocol for a COVID-19 clinical trial.
Please email us on breathingmatters@ucl.ac.uk and we will email you back with questions.
Thank you in advance.

 

 

 

In Memory Page

Thank you for visiting the Breathing Matters website to find out how to set up an ‘In Memory’ page.

You can set up an ‘In Memory’ page from our donation home page.  You can then share your personal donation page with friends and family. On this page, you can share memories, stories and photographs. You could also include details of a thanksgiving service. Your friends and family can add their sentiments too along with their donations and you can easily see what they have written and how much you have raised.

An ‘In Memory’ page is a way to let the memory of your loved one live on and is a wonderful way of celebrating their life. As well as being an online memorial in which you can share memories, stories and photographs, the funds raised through your page go directly to Breathing Matters and will help others affected by pulmonary fibrosis and other interstitial lung diseases plus COVID-19, bronchiectasis and other lung infections, and will help our work to continue in their memory.

You can keep your page open for as long as you wish too by adjusting the settings, so you can keep adding to your donations in the future or help promote fundraising if you are doing an event to commemorate your loved one. Your donation page is easy to share online so can be a good way to publicise and gather support for an event.

Your ‘In Memory’ page is created and maintained by you as a space to remember your friend or relative in your own way.

Thank you – giving a gift in memory is a very special way to remember your loved one.

 

Funeral Donations

If you are organising a collection in memory of a loved one and would like to donate to Breathing Matters to help us continue our important research work, we humbly thank you for thinking of us.

Organising a Collection

Many prefer to donate money in lieu of funeral flowers.

You can organise an online collection by setting up a personal donation page from our donation home page and then sharing your personal donation page with friends and family. On this page, you can share memories, stories and photographs with family and friends. You could also include details of a funeral or thanksgiving service. Your friends and family can add their sentiments too along with their donations.

The money raised will go directly to Breathing Matters and your donors will be given the option of giving Gift Aid which will increase their donations by 25%. You can also easily see how much has been raised in memory of your loved one.

Sending in Donations

Some family and friends may make donations by cheque or cash and your Funeral Director may collect these at the service.  When paying in donations, we would like to make sure that we process and acknowledge the donation correctly and it would be very helpful if you or the Funeral Director let us know:
• The name of the person the donation is being made in memory of.
• Your name, address and relationship to your loved one.

Please send all cheques to:
Breathing Matters
Rayne Institute, UCL
5 University Street
London WC1E 6JF

Feel free to print out our Gift Aid Certificate, which increases donations by 25%.

If you need any more information or if you need our bank details to directly transfer donations, please contact us on breathingmatters@ucl.ac.uk

Thank you – your donations will make a huge impact to our research work!

 

Spring 2020 Newsletter – Coronavirus Quiz Answers

Can a face mask protect you from the virus?

Only wear a mask if you are ill with COVID-19 symptoms (especially coughing) or looking after someone who may have COVID-19. Disposable face mask can only be used once. If you are not ill or looking after someone who is ill, then you are wasting a mask. There is a world-wide shortage of masks, so WHO urges people to use masks wisely.

What is the official name of this coronavirus?

SARS-Cov-2.  This virus causes the disease called COVID-19.  ‘COVID’ = COronaVIrusDisease. 19 from the year it was identified.

How long should you wash your hands for?

You should wash your hands for 20 seconds – two verses of ‘Happy Birthday To You’.

What is the NHS Helpline number?

111. 

To get help from NHS 111, you can:

  • Go to 111.nhs.uk (for people aged 5 and over only)
  • Call 111

NHS 111 is available 24 hours a day, 7 days a week.

If you have difficulties communicating or hearing, you can:

How do you protect yourself from the coronavirus?

  • Regularly and thoroughly clean your hands with an alcohol-based hand rub or wash them with soap and water.
    Why? Washing your hands with soap and water or using alcohol-based hand rub kills viruses that may be on your hands.
  • Maintain at least 2 metre (6 feet) distance between yourself and anyone who is coughing or sneezing.
    Why? When someone coughs or sneezes they spray small liquid droplets from their nose or mouth which may contain virus. If you are too close, you can breathe in the droplets, including the coronavirus if the person coughing has the disease.
  • Avoid touching eyes, nose and mouth.
    Why? Hands touch many surfaces and can pick up viruses. Once contaminated, hands can transfer the virus to your eyes, nose or mouth. From there, the virus can enter your body and can make you sick.
  • Make sure you, and the people around you, follow good respiratory hygiene. This means covering your mouth and nose with your bent elbow or tissue when you cough or sneeze. Then dispose of the used tissue immediately.
    Why? Droplets spread virus. By following good respiratory hygiene you protect the people around you from the virus.
  • Self-isolate by staying at home if you begin to feel unwell, even with mild symptoms such as headache, low grade fever (37.3 C or above) and slight runny nose, until you recover. If it is essential for you to have someone bring you supplies or to go out, e.g. to buy food, then wear a mask to avoid infecting other people.
    Why? Avoiding contact with others and visits to medical facilities will allow these facilities to operate more effectively and help protect you and others from possible COVID-19 and other viruses.
  • If you develop fever, cough and difficulty breathing, seek medical advice promptly as this may be due to a respiratory infection or other serious condition. Call in advance and tell your provider of any recent travel or contact with travelers.
    Why? Calling in advance will allow your health care provider to quickly direct you to the right health facility. This will also help to prevent possible spread of COVID-19 and other viruses.

Information taken from

Updated advice from 23.3.20: 

STAY AT HOME!

  • Only go outside for food, health reasons or work (but only if you cannot work from home).
  • If you go out, stay 2 metres (6ft) away from other people at all times.
  • Wash your hands as soon as you get home.

Do not meet others, even friends or family.

You can spread the virus even if you don’t have symptoms.

Information taken from: https://www.gov.uk/coronavirus

Spring 2020 Newsletter

Coronavirus – Update for Respiratory Patients

The novel coronavirus seems now to have established community transmission in the UK.  This means that people are catching the virus without having come across someone who had been in a high risk country such as Northern Italy, Iran or China. 

Fortunately, the numbers of people affected in the UK are relatively small as of 11th March 2020, so the risk of catching this disease is not that high.  COVID-19 is best thought of as like the usual respiratory viruses you can catch in winter and which can cause exacerbations of your underlying lung condition. In a minority, COVID-19 can also cause pneumonia directly.

If you have been in contact with someone who has recently been to a high risk part of the world or who has tested positive for COVID-19 infection, the Department of Health and British Lung Foundation websites will give you the advice you need to follow. Essentially, you should self-isolate for 14 days, and if you develop a fever or a cough, you will need to be tested for the coronavirus.

Testing for the coronavirus is best done by someone coming to your home rather than you travelling outside of your home, and the 111 helpline should be able to arrange this for you.

Now that the coronavirus is established in the UK, if you have underlying chronic lung disease, you will need to take care to avoid the infection.  This will mean avoiding people as much as possible (that is, not using public transport at busy periods, avoiding crowds, perhaps working from home) and scrupulous hand cleansing (as advised by the Department of Health).  This is especially important if you have severe lung disease – that is lung disease that makes you breathless when walking about – as COVID-19 infection is a particular risk if the lungs are already badly affected by another disease. If you get symptoms of a cough and fever, you may need to use the treatments you would normally use if you have an exacerbation, eg. increase your inhalers, perhaps start antibiotics.  You can ring 111 to arrange for someone to test you for the virus.  However, if your breathing is deteriorating significantly, you may have to come to the hospital to be treated.

British Lung Foundation: https://bit.ly/3amoBI0
Department of Health: https://bit.ly/2TdlCMf

Coronavirus – Respiratory Patient Guidance

At present, the novel coronavirus has infected only a very small number of people in the UK, almost all of whom have had contact with someone who has come from a high risk country where there has been a lot of coronavirus (eg. China, Iran, Northern Italy). Therefore, you are very unlikely to come across the virus unless you are in contact with someone who has travelled from a high risk country – so you don’t need to be worried about COVID-19 infection at this current time.

If you have been in contact with someone who has recently been to a high risk part of the world, the Department of Health and British Lung Foundation websites will give you the advice you need to follow. If you develop a fever or a cough, you will need to be tested for the coronavirus; and that is best done by someone coming to your home rather than you travelling outside of your home. Phone 111 and they will arrange this for you.

The British Lung Foundation have guidelines for those with a respiratory condition.

British Lung Foundation guide: https://bit.ly/3amoBI0
Department of Health website: https://bit.ly/2TdlCMf

Prudential RideLondon 100 – Guaranteed Places

Are you a keen cyclist and want to aim big?  Do you want to make it worthwhile and cycle for a respiratory charity?  Did you miss out on what could be the last ever ‘Prudential RideLondon’ ballot?

Breathing Matters has guaranteed places at this year’s event on Sunday, 16th August 2020?

RideLondon really is a true gem of an event starting at the iconic Olympic VeloPark in Lee Valley, cycling 100 miles of closed roads past London landmarks and through the stunning Surrey countryside (and hills!) and finishing in champion-style at the Mall outside Buckingham Palace!  It’s the UK’s largest world-class festival of cycling.

You don’t have to be an elite cyclist, however, and can choose a start time based at your level – you just need to be able to finish the course in under 9 hours and be over 18.  More info for riders can be found here  

Due to the COVID-19 uncertainty, we have decided that registration is NOW FREE so you will have no hassle if the event is cancelled.

We simply ask that you raise £500 to help find a cure+better treatments for pulmonary fibrosis, COVID-19 and lung infections.  Money raised can be donated after the event.  Groups of up to 5 are welcome. To sign up, email us at breathingmatters@ucl.ac.uk

The deadline for registration is Friday, 1st May 2020.

Share the love

Thank you to everyone who came to Jane Walker’s Valentine’s stall last Friday at UCH to help share the love.

£100 was raised for bronchiectasis research.

Jane sources unique, mostly home made fayre to sell at her charity stalls which you will not find on the high street.

Watch out for Jane’s upcoming stall dates on our events page.

Challenge Yourself Globally

Sometimes, a cycle at a national park, a coffee morning at your local cafe or a 10K run or even a marathon is just not enough of a challenge. Sometimes, you need to go further afield!

Breathing Matters has teamed up with Global Adventure Challenges who offer some amazing charity challenges. There are so many international challenges to choose from at www.globaladventurechallenges.com, but here’s just a few fabulous examples:

Everest Base Camp Trek, Nepal:  12-29.3.20, 12-29.11.20, 11-28.3.21, 11-28.11.20

Minimum sponsorship:

2020 – £399 registration + £3950 + airport TAX

2021 – £449 registration + £4160 + airport TA

Self-funding:

2020 – £399 registration + £1975 + airport TAX

2021 – £499 registration + £2080 + airport TAX

New for 2021!!  Trek to Petra, Jordan: 2-10.21

Minimum sponsorship: £299 registration + £3232 + airport TAX

Self-funding: £399 registration + £1616 + airport TAX

Kilimanjaro Trek, Tanzania:  22.9.20-2.10.20, 17-27.6.21, 16-26.9.21

Minimum sponsorship: 2010+2021 – £399 registration + £4360 + airport TAX

Self-funding: 2020+2021 – £399 registration + £2180 + airport TAX

Great Wall of China Trek: 12-20.9.20, 16-24.10.20, 8-16.5.21, 16-24.10.21

Minimum sponsorship: 2020+2021 – £299 registration + £2750 + airport TAX

Self-funding: 2020+2021 – £299 registration + £1375 + airport TAX

Trek the Grand Canyon: 19-26.9.20, 8-15.5.21, 11-18.9.21

Minimum sponsorship:

2020 – £449 registration + £4040 + airport TAX

2021 – £449 registration + £4090 + airport TAX

Self-funding:

2020 – £449 registration + £2020 + airport TAX

2021 – £449 registration + £2045 + airport TAX

Inca Trail, Peru: 31.7.20-9.8.20*, 20-29.11.20, 14-23.5.21, 30.7.21-8.8.21*, 5-14.11.21

Minimum sponsorship: 2020+202 – £299 registration + £3474 + £200 trek permit + airport TAX

Self-funding: 2020+202 – £299 registration + £1737 + £200 trek permit + airport TAX

*Extra supplements for July/August dates

New for 2021!!  Northern Lights Trek, Iceland: 3-7.3.21

Minimum sponsorship: £299 registration + £3124 + airport TAX

Self-funding: £299 registration + £1562 + airport TAX

Lapland: Husky Trail Dog Sled:  16-26.3.21

Minimum sponsorship: £399 registration + £4382 + airport TAX

Self-funding: £399 registration + £2191 + airport TAX

New for 2021!!  Cycle Mallorca: 22-29.6.21

Minimum sponsorship: £249 registration + £2674

Self-funding: £249 registration + £1337

London to Paris Bike Ride: 3-7.6.20, 15-19.7.20 [Tour de France], 12-16.8.20, 9-13.9.20, 2-6.6.21, 11-15.8.21, 8-12.9.21

2020+2021 – Minimum sponsorship: £125 registration + £1610

2020+2021 – Self-funding: £125 registration + £805

Vietnam to Cambodia Cycle:  7-17.3.20, 7-17.11.20, 6-16.3.21, 13-23.11.21

Minimum sponsorship: 2020+2021 – £399 registration + £3190 + airport TAX

Self-funding: 2020+2021 – £399 registration + £1599 + airport TAX

New for 2021!!  Cycle China: 7-17.10.21

Minimum sponsorship: £349 registration + £3290 + airport TAX

Self-funding: £349 registration + £1645 + airport TAX

Milan to Monaco Cycle: 30.9.20-4.10.20

Minimum sponsorship: £125 registration + £1810 + airport TAX

Self-funding: £125 registration + £905 + airport TAX

Payment Plan

There are two ways of funding your challenge; minimum sponsorship or self-funding.

For payment option A – minimum sponsorship – You pay the non-refundable deposit (the first sum above) to Global Adventure Challenges. This is used to organise your trip including securing airline seats and relevant permits. You then commit to raising the minimum sponsorship (the second sum above) for Breathing Matters.  You can set up a Justgiving Page from our home page (https://www.justgiving.com/breathingmatters) and 80% of the minimum sponsorship MUST be raised no later than ELEVEN WEEKS BEFORE DEPARTURE as this is when Breathing Matters will pay your challenge costs direct to Global Adventure Challenges.  Failure to raise this money may mean non-participation and cancellation of your challenge so it is important to raise your funds early.  The remaining 20% should be received no more than two weeks after your challenge finishes (we may ask for proof of offline pledges). We would be grateful if you could try and raise as much as you can over the minimum sponsorship target as every penny of this is what Breathing Matters will receive.  The more you raise, the more research work we can do and the more your challenge will have been worthwhile.

For payment option B – self-funding – You pay the non-refundable deposit (the first sum above) to Global Adventure Challenges which is used to organise your trip including securing airline seats and relevant permits. Ten weeks before departure, Global Adventure Challenges will invoice you for the balance (the second sum above) and this should be paid within two weeks; eight weeks prior to your challenge.  Although there is no minimum sponsorship target for this option, we would encourage you to raise as much as possible for Breathing Matters (via https://www.justgiving.com/breathingmatters). The more you raise, the more research work we can do and the more your challenge will have been worthwhile.

If all the above fills you with dread, why don’t you check out many more challenges including those closer to home in the UK, including Hadrian’s Wall Trek, Ben Nevis Trek, 24 Peak Challenge, Snowdon at Night Trek, Land’s End to John O’Groats cycle, Wales End to End cycle on www.globaladventurechallenges.com

Always Remember: Breathing Matters!