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Stories from October, 2016

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Bronchiectasis Supporters Evening

There was a lively Q+A session after Professor Jeremy Brown’s presentation at our Breathing Matters jb-talking-1Bronchiectasis Supporters Evening last week.

“How do we know when to start antibiotics?”

“What information will the newly opened Bronch UK study show?”

“What can we do to help?”

Professor Stephen Spiro from the British Lung Foundation explained how the BLF have a big voice and can lobby to make the case of bronchiectasis heard nationally on behalf of smaller charities, such as Breathing Matters.

The evening started off with a very personal story of bronchiectasis from Jane Walker, who is a patient at UCLH and part of our Breathing Matters team.  Jane used to be in the Holst Singers choir before bronchiectasis stopped her from singing professionally.  Jane now organises our annual Christmas Concert, with the Holst Singers in residence.

Guests were then treated to a tour of the refurbished laboratories.

It was so lovely to meet so many of you in person and we look forward to seeing you at our Christmas Concert at St Paul’s Church in Covent Garden on 9th December 2016, to help raise money for bronchiectasis research.

Thank you to Sainsbury’s Warren Street for supporting our evening.

Christmas Charity Carol Concert: Friday, 9th December 2016

Holly Please join us for:

an Evening of Carols

for Choir and Audience

with Seasonal Readings 

 

St Paul’s Church, Covent GardenSt Pauls logos

Friday 9th December 2016 at 7.30pm

 

The proceeds from the concert will go towards funding           Professor Jeremy Brown’s research at UCL into Bronchiectasis 

 

The Holst Singers is one of Britain’s foremost choirs

and has been described by the BBC

as a leading chorus on the international stage

Holst Singers Logo

Tickets are £25 and are now available from http://www.bmchristmas.bpt.me

For further details and paper tickets:

please contact Jane Walker

Tel: 01732 366346

Email: missjanewalker@hotmail.com

#Breathtember … Let’s Make a Difference Together!

Thank you to all of our supporters who got together to Get Out Of Breath for #Breathtember last month to help raise awareness of pulmonary fibrosis during September’s global PF awareness month.

colt-team-marseille-to-barcelona-2016liz-wiacek_swim-serpentine_25-9-16From cycling across the Pyrenees to a push-up challenge, from swimming the Serpentine to a sponsored trampoline jump session.  You all did your best to spread the word about pulmonary fibrosis.

And why did we do this … here’s why:

  • Men are nearly twice as likely as women to suffer from IPF.
  • There are 5000 new cases of IPF every year in the UK.
  • 50% of IPF sufferers die within 3 years of diagnosis.
  • More than 30,000 people will be diagnosed with IPF in the 27 EU countries each year. 
  • IPF is more common than all leukaemias conbined. 
  • Most patients are diagnosed 1-12 years after their first symptoms. 
  • 5 million people worldwide have IPF. 

We need more funding to change these statistics.

Thank you for your help during #Breathtember … let’s make a difference together!