We Need Your Opinion!

Pulmonary Fibrosis Patient Research Priorities Questionnaire

Can you sit? Can you click? Are you a PF patient?
Then make youself a warm drink and spend a few minutes filling in our survey to help other patients with lung fibrosis.

 

Clinical research should address important knowledge gaps or service changes that are relevant to patients. Therefore, UCL and UCLH want to include the views of patients when setting their research priorities. It brings together ‘Working Partnerships’ of patients and clinicians to identify and prioritise unanswered questions that they agree are most important to them. If research addresses these questions, decision-makers will be better equipped to design and deliver health services which best meet patients’ needs.

We are currently setting up a clinical trial for pulmonary fibrosis patients, which looks at reaching an accurate diagnosis of the specific form of pulmonary fibrosis earlier than previously by using a minimally invasive lung biopsy technique that would be delivered as a day procedure. As expert patients, we would very much appreciate your opinion to help us design this study. This is preliminary research to find out what is acceptable to patients in the context of research studies. We are not asking you to participate in any clinical trial.

To complete the survey, please click the folowing link: https://www.surveymonkey.com/s/ZGZQ6J8

Thank you so much for taking the time to help.