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Stories from November, 2011


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USA IPF PANTHER Study Press Release

Some of you may have read a recent press release from the investigators of the PANTHER Study in the USA.  This announced that the treatment arms that included Prednisolone and Azathioprine had been stopped and patients had been taken off these treatments as they appeared to increase death rates and hospital admissions compared to the placebo treatments.

The PANTHER study was designed to test various combinations of treatment in patients with definite IPF.  The four treatment groups that patients were randomly assigned to were

(1) Prednisolone and Azathioprine with N Acetyl Cysteine (NAC);

(2) Prednisolone and Azathioprine with placebo;

(3) N Acetyl Cysteine with placebo; or

(4) placebo and placebo (no active treatment). 

As a result, patients left in the study are now on NAC or placebo alone.

We must emphasise that this is a press release only and the full details are not known.

We would not recommend patients to stop taking Prednisolone and Azathioprine without discussing this with their respiratory physician and making an informed decision.  We will be discussing this with all our UCLH patients when they come to clinic over the next month.

The results of this study will be reported in early 2013.

Hilly Worksop

Congratulations to Claire Johnston and her team for running the Worksop Half Marathon at the end of October.  Claire reports “It was a very hilly course”. 

They managed to raise a staggering £1,250 for Breathing Matters. 

A massive thank you to the team.

Charity Christmas Cards Are Now Out of Stock

These cards are now out of stock. 

This year, Breathing Matters have teamed up with two online card companies which donate a percentage of sales directly to us.  If you would like to order charity Christmas cards for Breathing Matters this year, please click here  for more information.



We have two styles available, each designed by children, bearing the image of the Breathing Matters windmill logo. 

Each pack contains 10 cards, containing 5 cards of each design.  The cost is £3.99 per pack.  The cost of postage and packing is £2.50.

There is limited stock available and, if you are interested in purchasing some packs, I suggest emailing us on asap to reserve yours now.

Click here for the Christmas Card ORDER FORM.  Cheques should be made payable to “Breathing Matters UCLH Charity”. 

Please send your completed order form and cheque to: 

Donna Basire, Department of Thoracic Medicine, University College Hospital, UCLH NHS Foundation Trust, 4th Floor East, 250 Euston Road, London NW1 2PG

With generous support from Pad Creative: print & website design agency