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Stories from January, 2011


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Pulmonary Fibrosis Patient Stories

John’s Story

John Cooke from Dorking has Pulmonary Fibrosis and needs oxygen support. He lives in a first floor flat and struggles to  get up and down the stairs. John needs a ground floor residence but his local housing authority won’t pay for him to move. John was recently interviewed on Radio Surrey. Click here to hear John’s story John Cooke Radio Surrey

Breathing Matters has launched!

Launch of Breathing Matters

On Wednesday January 19th 2011, the Breathing Matters fund was officially launched by Prof Geoff Laurent, Director of the Centre for Respiratory Research.

Prof Laurent was joined by his team of scientists and researchers as well as respiratory doctors from University College Hospital.

The event was attended by over 120 patients who were invited to hear a series of presentations about the CRR and speak directly to doctors and scientists from UCH and the CRR.

Speakers included Dr Jo Porter, Malcolm Weallans and Manjiry Tamhane who spoke about topics ranging from living with a respiratory disease through to the importance of patient feedback in shaping future scientific investigations.

Breathing Matters Charity Bike Ride 12th June 2011!

Cycle 7 miles around Richmond Park and raise funds for Breathing Matters.

On 12th June 2011, UCLH are collaborating with Breathing Matters to raise funds for the Centre for Respiratory Research. Please join us to cycle around the 7 mile traffic-free circuit of Richmond Park.

Cyclists will receive a commemorative tee-shirt, goodies and a completion certificate. Cycles are available for hire at Richmond Park.

There is no registration fee, and no minimum sponsorship. We just ask you raise as much as you can! A prize will be given to the biggest fundraiser. Donations can be directed to the Breathing Matters Just Giving site at

Date: Sunday 12th June, Registration Time: 10.30am to 12.00pm

To sign up, please fill in the attached Charity Bike Ride 2011 form and email back to Donna Basire at

Please contact Donna Basire for further information at

Registered Charity Number: 229771

Launch of Breathing Matters!

On Wednesday 19th January 2011, the Centre for Respiratory Research will be launching the Breathing Matters fund.

Speaking at the event will be Prof Geoff Laurent, Director of the CRR, Dr Jo Porter, a leading respiratory specialist and Malcolm Weallans, Chairman of the Crackle Fund.

A number of other scientists and doctors will be attending, and the event is an opportunity for patients to speak directly to the medical and research community.

For further information, please email