Please Vote for Breathing Matters Today!

Sainsburys Voting 2015Voting has started in earnest for the Sainsbury’s Local Warren Street ‘Charity of the Year’.

If you can’t get there in person, you can vote online:

  1. Google Sainsbury’s local charity 2015 and click to Sainsbury’s local charity of the year. 
  2. You need to put in the postcode for the hospital NW1 2BU and it comes up with the choice of Sainsbury’s near to the hospital. Choose WARREN STREET.
  3. Scroll down to Breathing Matters and your vote will be registered!

Vote A for Breathing Matters today and make our year!

Thank you.

Are you fit to fly abroad?

flyingFlying in an aeroplane is the equivalent to being 5000 to 6000 feet up a mountain.  Think of a mountain twice as high as Ben Nevis, or being a third of the way up Everest.  The air is ‘thinner’ because the pressure is less and, as a result, there is less oxygen.  In fact, the concentration of oxygen falls from 21% at sea level, to about 15%.  Most people will tolerate this, but, if you already have problems breathing, this will become worse.

For those respiratory patients who do not normally need oxygen: Patients who can walk 100 metres on the flat without needing oxygen, and at a steady pace without feeling short of breath, are very unlikely to have a problem in-flight.  These patients are considered safe to fly according to the guidelines issed by the Civil Aviation Authority.  If you can not do this, you should talk to your doctor about the safety of travelling by air.  They will be able to carry out studies where they simulate the oxygen concentration in the aeroplane cabin.  You will be sitting comfortably wearing a close fitting mask that delivers oxygen at a reduced concentration of 15%  They will see what happens to your oxygen saturations over a period of time.  They can then recommend whether or not you need oxygen during the flight.  Short haul flights are less hazardous than longer ones.

For those respiratory patients that already need oxygen: Talk to your doctor about how much oxygen you will need in-flight.  This may be a higher flow rate than you normally use.  You must also remember to arrange oxygen to be available at your holiday destination.  Your local respiratory nurse will be able to offer you advice on this.

For all those patients that need oxygen on the flight: Remember to let the airline and/or travel agent know in good time, ideally a month before you fly.  Some, but not all airlines, charge for the oxygen and it might be worth planning your flight with an airline thay does not charge.  Do not rely on the airline having oxygen avalable at the last minute; the oxygen the airlines carry is for emergencies and would not last very long.

Final checklist once oxygen is sorted … don’t forget:

  • Check your insurance policy covers you for medical costs and return home.  The British Lung Foundation has a list of insurance companies that will insure patients with lung diseases.
  • Bring your EHIC [European health insurance card] if travelling to the EEA or Switzerland.  Phone 08456 062030 or visit
  • Arrange disabled assistance at the airport if required.
  • A letter in your hand luggage detailing your condition and medications.
  • Medication in your hand luggage plus one spare week’s worth.
  • And, most importantly, don’t forget to have fun!

Christmas Charity Carol Concert: Friday, 11th December 2015

Holly Please join us for:

an Evening of Carols

for Choir and Audience

with Seasonal Readings 


St Paul’s Church, Covent Garden

St Pauls logos


Friday 11th December 2015 at 7.30pm


 The proceeds from the concert will go towards funding Professor Jeremy Brown’s research at UCL into Bronchiectasis 


The Holst Singers is one of Britain’s          foremost choirs

and has been described by the BBC

as a leading chorus on the international stage


Tickets will be available from 1st July 2015 

Further details to follow …






Global Adventure Challenges: Explore the Globe

Sometimes, a cycle at a national park, a coffee morning at your local cafe or a 10K run is just not enough of a challenge. Sometimes, you need to go further afield!

Breathing Matters has teamed up with Global Adventure Challenges who offer some amazing charity challenges. There are so many international challenges to choose from at, but here’s just a few examples:

Canada: The Rockies Trek:- 19.9.15-26.9.15 or 17.9.16-24.9.16

Minimum sponsorship: £399 +  £3,200 + £250 airport TAX for 2015 trips

Self-funding:                       £399 + £1,500 + £250 airport TAX for 2015 trips


Tanzania,  Kilimanjaro; Machame Trail Trek: 18.6.15-28.6.15, 24.9.15-4.10.15 or 18.2.16-28.2.16, 18.8.16-28.8.16

Minimum sponsorship: £399 +  £3,600 + £250 airport TAX for 2015 trips

Self-funding:                       £399 + £1,799 + £250 airport TAX for 2015 trips


Morocco, Sahara Desert Trek: 19.11.15-24.11.15 or 18.2.16-23.2.16, 24.11.16-29.11.16

Minimum sponsorship: £199 +  £1,600 + £100 airport TAX for 2015 trips

Self-funding:                       £199 + £799 + £100 airport TAX for 2015 trips


USA Yosemite to San Fran Cycle: 6.6.15-14.6.15, 26.9.15-4.10.15 or 11.6.16-19.6.16, 24.9.16-2.10.16

Minimum sponsorship: £399 +  £3,600 + £250 airport TAX for 2015 trips

Self-funding:                       £399 + £1,800 + £250 airport TAX for 2015 trips

San Fran

India Cycle: 13.11.15-22.11.15 or 18.11.16-27.11.16

Minimum sponsorship: £299 +  £2,700 + £250 airport TAX for 2015 trips

Self-funding:                       £299 + £1,349 + £250 airport TAX for 2015 trips

India cycle

Zambia, Zambezi Raft Challenge: 19.9.15-26.9.15 or 10.9.16-17.9.16

Minimum sponsorship: £399 +  £3,500 + £250 airport TAX for 2015 trips

Self-funding:                       £399 + £1,749 + £250 airport TAX for 2015 trips


Lapland: Husky Trail Dog Sled: 26.3.16-2.4.16, 2.4.16-9.4.16

Minimum sponsorship: £499 +  £4,000 + £80 airport TAX

Self-funding:                       £499 + £1,999 + £80 airport TAX


India Motorcycle Challenge: 9.10.15-18.10.15 or 21.10.16-30.10.16

Minimum sponsorship: £399 +  £2,800 + £250 airport TAX for 2015 trips

Self-funding:                       £399 + £1,399 + £250 airport TAX for 2015 trips

motorcycle1-676 India

There are two ways of funding your challenge; minimum sponsorship or self-funding.

For payment option A – minimum sponsorship – You pay the non-refundable deposit (the first sum above) to Global Adventure Challenges.  This is used to organise your trip including securing airline seats and relevant permits. You then commit to raising the minimum sponsorship (the second sum above) for Breathing Matters.  You can set up a Justgiving Page from our home page ( and 80% of the minimum sponsorship MUST be raised no later than ELEVEN WEEKS BEFORE DEPARTURE as this is when Breathing Matters will pay your challenge costs direct to Global Adventure Challenges.  Failure to raise this money may mean non-participation and cancellation of your challenge so it is important to raise your funds early.  The remaining 20% should be received no more than two weeks after your challenge finishes (we may ask for proof of offline pledges). We would be grateful if you could try and raise as much as you can over the minimum sponsorship target as every penny of this is what Breathing Matters will receive.  The more you raise, the more research work we can do and the more your challenge will have been worthwhile.

For payment option B – self-funding - You pay the non-refundable deposit (the first sum above) to Global Adventure Challenges which is used to organise your trip including securing airline seats and relevant permits. Ten weeks before departure, Global Adventure Challenges will invoice you for the balance (the second sum above) and this should be paid within two weeks; eight weeks prior to your challenge.  Although there is no minimum sponsorship target for this option, we would encourage you to raise as much as possible for Breathing Matters (via The more you raise, the more research work we can do and the more your challenge will have been worthwhile.

If all the above fills you with dread, why don’t you check out many more challenges including those closer to home in the UK on

Always remember: breathing matters!



Spring 2015 Newsletter


For Spring 2015 Newsletter, please click here




Spring 2015 Newsletter: Quiz Answers

Can you identify the following Spring flowers?:

1. Crocus





2. Daffodil





3. Pussy Willow

Pussy willow




4. Tulip









Half Marathons in the City

We are excited to announce that Breathing Matters in partnership with Run for Charity are able to offer you one free place at the Vitality North London half marathon on Sunday, 15th March 2015 and one free place at the Vitality Run Hackney half marathon on Sunday, 10th May 2015.

These are two of the biggest half marathons in the UK this year.

Mo-Farah-960x440The Vitality North London half marathon takes you on a stadium to stadium tour of North London, running from the Allianz Park stadium in Barnet, all the way to Wembley Stadium and back to the Allianz Park stadium to a celebratory stadium finish in front of thousands of cheering spectators!

For more information on the event and route, please visit:

Hackney HMVitality Run Hackney is the fresh new half marathon to hit the capital!  Lace up, for a flat run through Hackey and the iconic Queen Elizabeth Olympic Park.

For more information on the event and route, please visit:

The deadlines to apply for one of these half marathons are:

  • North London Deadline: 24th February 2015
  • Run Hackney Deadline: 13th April 2015

Who’s up for the challenge?

Contact Breathing Matters directly on to register before places run out!





When:    Sunday, 14th June 2015, 10am-1.30pm

Where:    Lee Valley VeloPark, Queen Elizabeth Olympic Park

Cyclotopia brings you an incredible opportunity to visit Lee Valley VeloPark which brings together three cycling disciplines of road racing, mountain biking or track cycling in the iconic Velodrome. Follow the world’s top cyclists at the UK’s leading cycling hub – and raise money for Breathing Matters!
This event has something for everyone from complete novices to experienced cyclists.
Bikes available at the VeloPark.


•    Road Circuit road 2

How many times can you go around the brand new one mile road circuit?

  • Timing tags available at a cost of £2.50 to pay on the day
  • Suitable for all levels
  • Children welcome
  • Bike and helmet available at no charge (NB: fleet minimum height 142cm). Can bring own bike
  • Registration: adults £10, families £20
  • Minimum sponsorship: adults £30, families £60

•    Mountain Trail mountain 2

Challenge yourself to conquer 5 miles of off-road traffic-free mountain bike trail.  Not for the faint hearted! 

  • Blue level recommended
  • Suitable for experienced cyclists
  • Minimum age 9 years
  • Bike and helmet available at no charge (NB: fleet minimum height 142cm). Can bring own bike
  • Registration: adults £10, families £20
  • Minimum sponsorship: adults £30, families £60

•    Velodrome velodrome 1

Experience the Velodrome and cycle on the same track where Sir Chris Hoy and his Team GB and Paralympics GB teammates received their Olympic Gold medals in 2012. This is the fastest Velodrome in the world!

  • For all levels
  • Age 12 and upwards
  • Velodrome package: £50
  • Minimum sponsorship: £50
  • Includes bike and helmet.
  • Package includes one more cycling discipline (road circuit or mountain trail)
  • Only 32 places; first come, first served
  • Timings 10.30am-11.50am & 12pm-1.20pm. Registration 20 minute before time slot.


This bespoke event is a first for Breathing Matters and UCLH Charity and we want as many people to join us to raise awareness and money.
Please raise as much as you can – there is a prize for the top fundraiser!  You can set up a Justgiving page via


For any queries please contactDonna Basire at



This email address is being protected from spambots. You need JavaScript enabled to view it.

Online Fundraising Tips

Thanks for supporting Breathing Matters.  This article is to help you get the basics right when fundraising for us.

Setting up an online fundraising pageJG sponsor me

Set up your own online page on Justgiving from the Breathing Matters Justgiving home page

Personalise your page with information on who you are doing it for, how you are doing it and why you are doing it.

Who: Is this for someone special, perhaps you are setting up a tribute page?  If so, write about them, add lots of photos and explain what this person means/meant to you.

How: What are you doing? Write about your challenge and how difficult a challenge it might be for you. Tell your story.

Why: Explain a bit about Breathing Matters and why you chose to support this charity, and what it means to you to help us in our commitment to find a cure and better treatments for pulmonary fibrosis and lung infections.

Add a target total.

People will be much more inclined to help with your fundraising if they know your story and what this means to you, and how much you want to raise.

megaphoneSpread the Word

Use social media to publicise your fundraising.  You can use email, facebook, twitter, LinkedIn, Google+, email, YouTube, blogs and texts.  Every share is worth a £5 donation.

Email your friends, family, work colleagues and perhaps members from your health club or other hobbies you may have with your fundraising page address and tell them why you would like their support.  Use an exciting subject title to grab their interest.  Don’t use words like ‘free’ or ‘exciting’ as this might get lost in spam folders. Share your passion and explain your motivation for your challenge.

Put regular updates on your facebook page and regularly tweet your challenge.  Follow Breathing Matters on @breathingmatter and like us on and we can retweet and share these.  You can also retweet our tweets which will help explain why you and your contacts are supporting us.

Ask that your emails and social media posts and tweets are forwarded on.

Tip: Ask someone you know will be generous to be your first sponsor – others will see the amount and be encouraged to match it!

Tip: Make sure you have a photo of you smiling on your fundraising page.

You can set up a TextGiving code from your Justgiving page very easily.  Email your code and a suggested amount to donate; it’s very quick and efficient!

Be honest in your social media messages; tell your supporters if it is hard, tell us if something funny happened. Tell us if you have cried or laughed.  Your supporters will share your pain and the laughter with you.

To keep people visiting your page, make regular updates to your page and email your contacts to let them know there are new things to see.  People who have already sponsored you will be interested and it is a polite reminder to those who have not had time to donate.

Keep people updated with your fundraising tally and ask for their help to reach your target … or smash through it!

Think about when you send out emails – people tend to be more generous around payday!

Ask your employer for a donation.  Some of our fundraisers have had their totals matched by their workplace.

Contact the local press to see if they can help advertise your event.

After the Eventfundraising target

Strike while the iron is hot. People still like to donate after the event, so remember to update your page with photos of the day and email/tweet/facebook thanking those who have supported you and asking those who haven’t to do so now to help you reach or surpass your target.  A large amount of money is raised after an event – in fact 20% –  so it is an important part of fundraising.

When your fundraising page has closed and you have your final total, thank your supporters again and tell them what they have helped with.  Perhaps include a thank you message from Breathing Matters …. remember, you may do another challenge and you want them on your side next time too!






Donate Clothes for Charity

Clothes for Charity LogoBreathing Matters are very excited to announce a joint partnership with Clothes for Charity.

Recycling clothes or giving them to charity is a kind, selfless gesture that can help raise vital funds. But it can also be a bit of a hassle. Our supporters have contacted us to ask where they can donate clothes for us. Breathing Matters does not have charity outlets where you can donate and, up until now, we had no method that you could donate in this way.

Now you can with Clothes for Charity!

Clothes for Charity provide a secure, trackable way to donate clothes online. All you have to do is register, nominate Breathing Matters as your charity, request a donation bag and arrange a collection from a place that suits you. Clothes for Charity will email you to let you know your clothes arrived safely. And best of all, while most clothes collection schemes only give £70 per tonne to a charity, Clothes for Charity will give £200 to Breathing Matters.

Take a look at how it works:

Please help us spread the word among friends and family; the more you give, the more you donate.

So, now your Spring cleaning will be more worthwhile!!clothes